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Cambridge TYA Projects

Cambridge TYA Projects. Helen Hatcher and Laura Abbas. Cambridge TYA Projects. Exercise Initiative Fatigue workshops DVD and exercise program Fertility Psycho-social Website Late effects Tracker TYA focus group and Young Adult Co-Leads. Fatigue. Effect highly underestimated

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Cambridge TYA Projects

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  1. Cambridge TYA Projects Helen Hatcher and Laura Abbas

  2. Cambridge TYA Projects • Exercise Initiative • Fatigue workshops • DVD and exercise program • Fertility • Psycho-social • Website • Late effects Tracker • TYA focus group and Young Adult Co-Leads

  3. Fatigue • Effect highly underestimated • Up to 90% adult patients who have had chemo or RT • Unknown in TYA (13-24) with cancer • Affects many domains of life • Physical activity • Sleep • Mental concentration • Social life

  4. Fatigue workshops • Small groups 2-4 TYA and their parents/partners • Assessment of specific areas of fatigue • Visual analogue score • Education and strategies given • Assess improvement in activity/functioning after 6 -12 months • Aim to return to more active life after cancer treatment

  5. Finding the words

  6. Parental Understanding

  7. Fatigue Workshops

  8. Fertility • Assessment of advice given to 13-24 year olds • Gaps identified (13-15 year old girls) • Focus group • Many strong comments as key survivorship issue • Established acute TYA fertility information service • Revaluated advice • Information improved and will be evaluated 2011

  9. Fertility

  10. The Survivorship Toolbox by Laura Abbas • What you really need or want to know: • Fertility • Finances • Feelings • www.cforward.org.uk

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