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Introducing BreastCancerTrials.org. A Partnership Among Industry, Government, Healthcare Providers/Investigators, and Patients to Accelerate Clinical Trial Accrual. BCT staff code trials. Patient self-reports BCT Record. caMATCH Engine. Patient Records Trial Criteria.
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Introducing BreastCancerTrials.org A Partnership Among Industry, Government, Healthcare Providers/Investigators, and Patientsto Accelerate Clinical Trial Accrual
BCT staff code trials Patient self-reports BCT Record caMATCH Engine Patient Records Trial Criteria A collaborative solution Acceptance/usability validated by 2-year pilot developed with NCI • Patient receives trial matches with summaries/contact information. • Patient contacts research site: • Through BCT’s secure Message Service/ Shares Health History • Or • Through email/phone using BCT-provided contact information
Stage III recurrent 3 cm invasive breast cancer • ER/PR/HER2 + • Mastectomy and history of hypertension Health history forms Online HELP The Matching Tool: 3 Steps1. User completes personalized health history My Health Concern generates forms tailored to patient’s situation
2. BCT returns list of trials with lay summary Callout shows trial locations and effort Summary expands to show more detail
3. User views research site locationsThen contacts a site through secure message service Dialog box allows patient to contact research site. She can attach health summary. Research sites display on list or map
Patient Health Summary Screening Tool shows patient data alongside trial criteria BCT alerts site to other health conditions Research site uses BCT tools to screen eligibility
Research Site Portal BCT research site portal displays metrics for each trial BCT collaborates with research sites to collect information about why eligible patients choose not to enroll
Hallmarks of BCT • Trustworthy and collaborative • Not-for-profit and Free: operated by Quantum Leap Healthcare Collaborative • Relationships with NCI, Cancer Centers, Cooperative Groups, CRIX International • Consumers: User-friendly and respectful of privacy • Online HELP, user support, informative trial summaries • Privacy: use anonymously or register for advanced features • Online Health History, Message Service, Trial Alert Service • Research Sites: Tools for efficient screening • Online screening tool and health summary for evaluating eligibility criteria • Minimal burden: confirmed contact information/willingness to respond to patients • Sponsors: Accelerate accrual • Feedback on why eligible patients decline to enroll • Opportunity to do something “good” for patients
Thank you for your support!For further information, contact:Elly Cohen, Ph.D., BCT Project Managerelly.cohen@ucsfmedctr.org(415)-885-3605