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HIV Disclosure

HIV Disclosure . Talking with your children and family about living with HIV/AIDS. Questions Regarding Disclosure from the parents perspective. Should I tell my child( ren )? When should I talk with them? How will my child( ren ) take the news? Will my diagnosis stigmatize my child( ren )?

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HIV Disclosure

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  1. HIV Disclosure Talking with your children and family about living with HIV/AIDS

  2. Questions Regarding Disclosurefrom the parents perspective • Should I tell my child(ren)? • When should I talk with them? • How will my child(ren) take the news? • Will my diagnosis stigmatize my child(ren)? • How will my relationship with my child(ren) change? • Can my kids keep a secret? • Will my HIV status be a burden to my children? • How should I prepare to tell them? (Perm planning, education, resources)

  3. Talking to your children about HIV Status • Emotions • Overwhelmed • Fear • Anxiety • Guilt • Support • Doctor • Social Worker • Family • Friends • Church

  4. Disclosure • Decisions to disclose HIV status depend on several factors: • How long a person has been positive • Access to social and emotional resources • The nature of the relationship between the person with HIV/AIDS and the person being disclosed to

  5. Telling children they are HIV+ • Why do you want you children to know • HIV-related questions and answers • Resources and Information • Age –appropriate • Information little by little as they are ready • Cognitive age vs. Physical Age • Open communication and non judgment • Prepare to talk about sexual health • Feelings of isolation, anger, depression • Ask for help • Disclosure is a private/family manner

  6. Telling Children you are HIV+ • How will your children react? • Children will ask about your health • What will happen to them if you get sick? • How did you get it? Will they get it? • Might have no questions at all • Your children might already know something • May be angry about the secrets • Open communication is key • Use this as an opportunity to educate • Encourage them to talk to you and others if needed

  7. Taking care of yourself • It is important to keep doctors appointments and take medications • You are a better parent if you are healthy • Important to deal with feelings and questions • Support groups and peer groups can be helpful • Talk to your social worker/counselor

  8. Preparation for Disclosure • Role Play with your Social Worker • Rehearse different sceneries • Have support systems and resources available • Permanency Planning and Legal in Place • Standby Guardianships • Living Wills • Power of Attorney • Support Groups and Peer Support • Individual, Family, and Children

  9. Permanency Planning and Case Management • Part of Check list (housing, mental health, etc) • Empowerment • Permanency Planning for all parents and caregivers • Positive decision • Normalize the decision

  10. Social Worker’s Role Level 1: No involvement Level 2: Working with Family Before and After Disclosure but not present at event Level 3: Present at disclosure for support but not involved with event Level 4: Participates in disclosure event but does not lead Level 5: Leads the disclosure discussion Level 6: Social Worker/Doctor discloses status of child or parent

  11. Case Study: Rochelle

  12. Case Study: Samantha

  13. Tips • Deal with your own feelings first • Have answers to anticipated questions • Build a strong parent-child relationship • Seek support for yourself and children • Gather HIV-related information and resources • Create an appropriate environment for disclosure: • No interruptions • Relaxed as Possible’ • Social Worker involvement (Level) • Remember to follow up and that it is a process • Give love, reassurance and hugs!!

  14. Resources • Bauman, L. J. et al, (2007). Children of Mothers With HIV/AIDS: Unmet Needs for Mental Health Services. Pediatrics, 120 (5), pp. 1141- 1146. • Cichocki, M. (2009, Jan. 10). How to Tell Your Children You Have HIV or AIDS. (chap. Health’s Disease and Condition) Retrieved Nove. 23, 2011, from http://aids.about.com/od/hivseniors/a/aginghly.htm • Cogwill, B. O. et al, (2008). Fears About HIV Transmission in Families With an HIV-Infected Parent: A Qualitative Analysis. Pediatrics, 122 (5), pp. 950-956. • Kalichman, S.C. (2007, Nov). HIV/AIDS Case Managers and Client HIV Status Disclosure: Perceived Client Needs, Practices, and Services. Health & Social Work. 33(4), 259-262. Retrieved Nov 2011, from NASW. • Kennedy, D. P, B. Cogwill, et al (2010). Parents’ Disclosure of Their HIV Infection to Their Children in the Context of the Family. Springer, 14 pp. 1095-1104. • Mahanes, J. (2011, Jun. 16). D.C. HIV/AIDS Rate Still At Epidemic Levels. Washington City Paper. Retrieved May 22, 2012, from www.washingtoncitypaper.com/blogs/citydesk/2011/16/d-chivaids. • World Health Organization (2011). Guideline on HIV Disclosure Counseling For Children Up to 12 Years of Age. [Manual/Programme]. Geneva, Switzerland: WHO Press

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