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Once You Have Been Diagnosed With Celiac Disease

Learn about comprehensive monitoring and care for Celiac disease patients. Understand what happens during clinic visits and how to maintain a gluten-free diet. Nutrition advice, blood test monitoring, and family screening recommendations included.

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Once You Have Been Diagnosed With Celiac Disease

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  1. Once You Have Been Diagnosed With Celiac Disease Kristin A. Sikes MSN APRN CPNP CDE Yale Pediatric Celiac Clinic

  2. Clinic Visits • We would like to see you: • 3 months after diagnosis • 6 months after diagnosis • 1 year after diagnosis • Annually thereafter • Anytime you are having trouble with living gluten free or have Celiac symptoms that concern you

  3. What Will Happen at the Visit? • You will meet with either Dr. Porto or Kristin Sikes APRN • We review the following: • Growth and development • Gastro-intestinal symptoms • How is the gluten free diet going • You will meet with our nutritionist (if needed) • You will have some blood work drawn

  4. Blood Tests that We Monitor • Celiac Markers • Tissue Transglutaminase IgA (TTG IgA) • Deaminated Gliadin Protein IgG (DGP IgG) • Iron Deficiency/Iron Deficient Anemia • Complete Blood Count • Iron/Ferritin Levels • Other commonly seen conditions • Thyroid Stimulating Hormone (TSH) • Hepatitis B Vaccine effectivness • Vitamin Deficiency • Vitamin D levels

  5. Meeting with the Nutritionist Get a quick refresher on how to read labels Review alternatives to your “favorite” foods Hear about new GF brands and foods Ask any questions that you might have

  6. How to Keep Your Body Healthy Eat a wide variety of foods – with lots of fresh fruits and vegetables Exercise daily (everyone should do this!) READ labels – Gluten can hide in anything Plan Ahead: Nothing worse than getting somewhere and not being able to eat because there is nothing GF available

  7. What about the Rest of the Family? • We recommend that all first degree relatives (parents and siblings) of kids with celiac be monitored for Celiac as well • Genetic Tests • Celiac Screening tests • Will need to be done every 2-3 years or with Symptoms

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