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Conference Summary and Closing Remarks

Conference Summary and Closing Remarks. Robb Linkins October 2003. T. The Cup (Almost) Half Full. 95%. 43%. Impact of HIPAA Privacy Rule. HIPAA permits providers to report to registries without individual authorization

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Conference Summary and Closing Remarks

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  1. Conference Summary andClosing Remarks Robb Linkins October 2003

  2. T The Cup (Almost) Half Full 95% 43%

  3. Impact of HIPAA Privacy Rule • HIPAA permits providers to report to registries without individual authorization • Most registries can report to providers without individual authorization

  4. Some Important Partners • American Immunization Registry Association (AIRA) • Every Child by Two (ECBT) • Association of Immunization Managers (AIM)

  5. Programmatic Registry Operations Workgroup (PROW) • Standards developed • vaccine management • provider quality assurance • service delivery • consumer information • surveillance • assessment

  6. Coverage with 3 Doses of PCV7 in 7 Month Old Children in One Sentinel Siteby Calendar Date Shortage ended Shortage began ACIP recommendation PCV7 licensed

  7. Sentinel Sites • CDC funded 8 sentinel sites for data quality improvement initiatives • Next Steps • competitive awards process planned For additional information: Diana Bartlett at ZXD5@cdc.gov

  8. NIS/RegistryData Comparison Project • Lessons learned • Acceptable - yes • > 80% consent • Feasible - yes • 2 sites; > 80% participation • Helpful?

  9. NIS/RegistryData Comparison ProjectHelpful? • Assess feasibility of identifying “at risk” providers and children for incomplete data • Determine the usefulness of supplementing NIS with registry data • Support replicating elsewhere • Consider incorporating methodology into certification process

  10. Susan Abernathy Steven Black Barbara Canavan Simon Cohn Floyd Eisenberg Michael Flynn Julie Gamez Jason Goldwater Ed Gotlieb Claire Hannan Joan Henneberry Robert Jenders Tamara Lewis Robb Linkins Dennis Michaud Joe Nay Carl Phillip Mehrdad Shafa Paula Soper Ed Thompson Michael Vahldieck John Warming Jeff Weihl Warren Williams Certification Thank You!

  11. Registry CertificationBackground • Developed draft certification criteria • Pilot tested in 3 states • Michigan • New Jersey • Utah

  12. Certification Standards Achieved based on Draft Criteria, Pilot Test Results (n=3)

  13. Registry CertificationBackground • Developed draft certification criteria • Pilot tested in 3 states • Planning final pilot, 2004 • Anticipating roll-out, 2005

  14. Implications of Reorganization • Aligns registries with program delivery • Synergizes resources • Improves accountability • Strengthens focus on registries as tools rather than systems

  15. Registry Challenges Data Quality Data Use Registry Acceptability Provider Participation

  16. CDC Staff Debbie Autman Amanda Bryant Susan Farrall Suzanne Johnson de Leon Ron Nuse Cecelia Thompson Kathy Towers-Solis Sharnell Wilson Registry Branch Staff Our Partners Every Child by Two External Planning Committee DESA Georgia Department of Human Resources Task Force for Child Survival A Special Thank You!

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