Welcome to the Partners In Care Webex 8 – 28 th November 2012 Today's focus is on

1. Welcome to the Partners In Care Webex 8 – 28th November 2012 Today's focus is on ‘stories and narratives’ We will start at 8am @LynneMaher1

2. Agenda for today’s WebEx • Forthcoming Webex Dates • Tuesday 15th January 2013 • Wednesday 6th February 2013 • Wednesday 27th February 2013- The Final WebEx • Sharing – stories and narratives presentations • Workbook reviews- update • Your feedback needed- short questionnaire • Time for questions

3. Rachel Clarke- Avon and Wiltshire Mental Health Partnership NHS Trust Sharing – stories and narratives

4. Shared Voice Improving Bristol Specialist Drug and Alcohol Services Avon and Wiltshire Mental Health Partnership NHS Trust

5. CAPTURE: WE listened to……

6. 22 former and current service users Capture: WE LISTENED TO……

7. 22 former and current service users Multidisciplinary staff workshop, 6 interviews Capture: WE LISTENED TO……

8. 22 former and current service users Multidisciplinary staff workshop, 6 interviews Stakeholder survey Capture: WE LISTENED TO……

9. Understand: Spider Diagrams

10. Understand:Stories

11. Understand:Stories

12. Clear Information Leaflets/ DVDs/ Open Days/ Text Service Building hope and confidence Recovery Network/ Peer Mentors Optimising detox and recovery Peer mentor led preparation groups/ Improve signposting after detox Improvement priorities

13. “Great to be heard and listened to” “Very useful and thought provoking experience” “Was an eye opener” “Really great day – film clips very informative and honest!” “..an excellent way for Service Users to share their thoughts and ideas” “Very positive experience. Well done BSDAS for being open. Positive intention for change was also very clear” What people said…

14. Improve and Measure Co-design and implement Roll out to other services January 2013 Training and coaching Capability, Capacity, Confidence Next steps

15. THANK YOU Rachel.Clark@awp.nhs.uk Head of Innovation Avon and Wiltshire Mental Health Partnership NHS Trust

16. Ruth Wickens- Capital & Coast District Health BoardSharing – stories and narratives

17. Ruth Wickens and Nick White: Understanding and improving patients’ experience of the radiotherapy mask

19. Norman “There were two things that surprised me: one was the size of it. When you think about a mask you think quite small, just covering your face, whereas the mask that was produced was a big mask that went right down covering the shoulders. The other thing was that I didn’t expect it to be attached to a horizontal position – that was a surprise. Those two things made it hard to cope with initially, from being told I needed a mask to the actual reality of what that meant.”

20. Judy “ Once again when that silence would kick in I’d be saying to myself, “What’s happening? Someone please talk to me”. It might seem a very short time to someone who’s on the other side of the wall and working on the machine, but that silence can be a very long time when you’re lying there and wondering what on earth’s going on.”

21. Cheryl & Phil “You’re in, you’re bang, you’re on the table, your mask is put on, I never had the chance to look around the room.... Your head is fighting to say I want to get out of this, I want to get away.” “Your head is fighting to say I want to get out of this, I want to get away, being nauseated, held down, having something in your mouth – it was horrible.”

22. Achievements • 4 in-depth interviews • Patients valued the time and space to talk • Raised awareness of the issue • Spoke at psycho-oncology education session • Practice change – nursing, medical, radiation therapists....

23. Where to from here? • More interviews? • Revisit the experience questionnaire? • Share what we’ve learnt – an experience event with the staff who are supportive? Change won’t be groundbreaking here.... but every little bit helps.

24. Thank you to Rachel and Ruth.Any questions or chat?

25. Workbook Reviews- update • Most- not all - workbooks have now been reviewed. • Most projects are still at the Capture stage • All need to be moving onto Understand and even starting on the Improve stage before Christmas • In January and early February Improveand Measure I do not need to see huge volumes just that you have worked through, understood and demonstrated that you have used the whole process.

26. Workbook Reviews- update • Some people have not identified learning within the workbook as they use the process or from the WebEx's. This will need to be completed in the workbook when they come back for the final review. • Participation in the WebEx's – please make sure that you put a note in the chat if you are listening with someone else or if you do not see your name on the participants list.

27. Workbook- Final Review • Completed need to be in my inbox between the 6th and 8th February 2013. • I have allocated Thursday 7th and Monday 11th to undertake the reviews. • This allows for a little time in case any further clarification is needed within the workbooks. • Certificates will be sent through to those who have successfully completed the programme by 28th February 2013.

28. Thank you to those who agreed to be interviewed by Annette.

29. Well........ I need you • Undertaking a review • How is the programme, what do you think of this way of learning ( at a distance), what works, what does not work? • Other comments always welcome • Please complete the quick survey that we have sent around