Specialist Nurse Trainers for Children with Disabilities

1. Specialist Nurse Trainers for Children with Disabilities

2. Meet the team

3. Service available to child/YP:- • Living in Lincolnshire • Registered with a Lincolnshire GP • Under care of a Lincoln Hospital Consultant • Accessing a Lincolnshire Provider • Age 0 – 19 years*

4. The Need to Service Development • Best Value Review (2001) Better Services for Disabled Children in Lincolnshire • Lack of training and support • Increasing number of children

5. The Children's Fund • Project Proposal (2002) • Commenced January 2003 • Initially funded until 31st March 2004 • 5 - 13 year age group • Suggested max number of children approx 50

6. Service supports Child with any disability with a physical health need • Tracheostomy • Gastrostomy • NG tube • Requiring rectal Diazepam/buccal Midazolam • Intermittent Catheterisation • Oral suction

7. Oxygen dependency/therapy • Emergency injections (Hydrocortisone) • Blood sugar testing (not for diabetes)

8. Service Priorities • Training and support • Cohesive, comprehensive, regularly reviewed • Resources • Training material • Information

9. Beneficiaries • Children • Safe, consistent care - evidence based • Involved in training

10. School Staff/Carers • Opportunity to gain skills • Provide safe, consistent care • Regular reviews

11. Parents • Increased confidence in school/nursery/transport staff • Involved in training • Reviewing training packages

12. School Health Nurses/Other professionals • Able to update own practice • Access to information and resources

13. Service available to • School staff/after school clubs etc. • Nurseries/Childminders • School transport teams • Social Care staff and foster carers • STRUT House/Haven Cottage • Voluntary agencies - AFC, SENSE, STRUT in the Community

14. Children receiving domiciliary care from LCHS • Children entitled to care funded by Continuing Health Care – either PHB or agency carers • Children entitled to care funded by Direct Payment (Social care) • Short Breaks Providers

15. Facts and figures • Approx 800 children/young people • From April 2014 - March 2015 • 1736 training sessions • Over 3000 individuals trained

16. Referral to service Referrals taken from:- • Families • Schools/nurseries • Social Care • Continuing Care • Short Breaks Providers

17. Consent • Verbal Consent from parents • Written consent/service information • Enables access to medical records to ensure child specific training

18. Training • General or child specific • Theory • Practical demonstration/support • Competency assessment • Annual review/refresher

19. Team contacts Office – 01522 521186 Mobiles:- • Julie Dixon 07900 604951 • John Gowans 07900 605794 • Helen Moig 07833 400874 • Jenna Humphrey 07795 641996 • Julie Smith 07824 835500 • Fiona Guinness 07976 210705

20. Team base St Francis School Wickenby Crescent Lincoln LN1 3TJ

21. Any questions?

22. Epilepsy What is epilepsy? Epilepsy is a tendency to have recurrent seizures normally diagnosed after 2 or more seizures • Idiopathic/cryptogenic – no known cause • Symptomatic – damage to brain from variety of reasons

23. Epilepsy Support • Affects 1:80 children/young people • 75 people per day diagnosed in UK • 40 types of seizure

24. Epilepsy Support • Impact varies • Need for support varies • Myths and misconceptions • Stigma

25. Epilepsy Support • Risk assessment • Adult support • Emergency medication