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Organ Donation Taskforce

Organ Donation Taskforce. Chris Elding ODTF member Donor Transplant Co-ordination Team Leader South Thames DTC service. Deceased donors, transplants and active transplant list : UK. Potential Donor Audit. Falling numbers of BSD 20% reduction in BSD diagnosis (2003-07)

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Organ Donation Taskforce

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  1. Organ Donation Taskforce Chris Elding ODTF member Donor Transplant Co-ordination Team Leader South Thames DTC service

  2. Deceased donors, transplants and active transplant list : UK

  3. Potential Donor Audit • Falling numbers of BSD • 20% reduction in BSD diagnosis (2003-07) • 30% of BSD diagnosis were never tested (2003-4) • 8% who were tested there was no record of donation being considered and in those where it was 7% were not approached • Increase in family refusal • Widespread public support for organ donation yet family refusal for donation was 40% • When someone’s wishes are known family refusal drops to less that 10% • But only 24% are registered on the NHS ODR

  4. ODTF • Ministerial Task Force • Established in November 2006 • Its brief was • To overcome barriers to the organ donation and transplantation process and recommend solutions within existing operational and legal frameworks • Its report ‘Organs for Transplant’ published in January 2008 • 14 recommendations, accepted in full by the Government which the Task Force believed would increase organ donation by 50% in 5 years • 1 year into a 3 year implementation strategy

  5. Membership of the Task Force • Chaired by Elisabeth Buggins Chair West Midlands SHA & Non Exec NHSBT • Representatives from • Critical Care • Transplantation • NHS Management • Donor coordination • Donor family and recipient charities • Commissioning services • Ethics & diversity • Media & Journalism • In attendance • NHSBT, UKT, DH & devolved administrations

  6. Process of review • Review of the overall structure of the donation, retrieval and transplant service • Identified strengths and weaknesses within the current system and compared with international evidence from Spain, USA and Australia • Legal and ethical issues were explored • Economics and cost effectiveness of transplantation and its benefit to the wider NHS • Training, performance management and predictions of future need were considered

  7. 3 main issues • Donor Identification and referral • Donor Co-ordination • Organ retrieval • Running throughout were the following issues that needed exploring • Legal and ethical • The role of the NHS • Organisation, co-ordination and retrieval • Training • Public recognition and promotion

  8. ODTF Supplemental report

  9. Recommendations • Recommendation 1 & 2 – UK wide service • A UK wide Organ Donation Organisation, the responsibility of NHSBT • Recommendation 3 - Legal & ethics • Resolve of outstanding ethical, legal and professional issues. Clear frameworks of good practice • Recommendation 4 – Making donation ‘usual’ • Donation should feature in all end of life care pathways. Appointment of clinical donation champions and Trust donation committees

  10. Recommendations 2 • Recommendation 5, 6 & 7 - Monitoring • Minimum notification criteria to DTC • Monitoring of Trust performance • BSD testing in all patients where BSD is a likely diagnosis • Recommendation 8 – Costs of donor management • Reimbursement costs for the donation expenses incurred

  11. Recommendations 3 • Recommendation 9 – Donor Transplant Coordination • Central employment • Increasing DTC numbers and embedding within Trusts. • Development of electronic offering systems • Recommendation 10 – Retrieval teams • Commissioning of dedicated organ retrieval teams UK wide • Recommendation 11 – Training • Mandatory training in the principles of donation

  12. Recommendations 4 • Recommendation 12 – Honouring donation • Personal & public recognition where desired • Recommendation 13 & 14 – Promoting donation • General public, BME population • Coroner

  13. Where are we now? • NHSBT Organ Donation & Transplantation directorate • In the process of transferring DTC’s to central employment and currently recruiting phase 3 • Electronic offering system ‘live’ by October. • Establishment of a donation ethics group • Donation Champions appointed and committees in progress • Reimbursement of donation activity established • Process of scoping long & short term training needs • Research commissioned to identify real reasons why people don’t register

  14. Any Questions?

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