NHS Newborn Hearing Screening Programme

2. NHS Newborn Hearing Screening Programme Marie Coughlin Screening Lead May 24th 2010

3. Today’s Session • Third of 6 Antenatal & Newborn sessions throughout 2010

4. Reasons for Today’s Session • As a result of ChaMPs commissioned review of screening • A need to further engage public health in Antenatal & Newborn Screening Programmes • At the request of public health screening leads • Part of C&M Screening Action Plan • Thought it useful to invite commissioners also

5. Aim of the Session • To increase knowledge base within public health and commissioning

6. Session Format • Overview of UK NSC/NWSHA structure • Overview of Newborn Hearing Screening • Review of patient pathway • Data, performance and QA • Future developments • Questions/comments

7. Overarching Structure • UK NSC oversees 6 Antenatal & Newborn Screening Programmes • UK NSC has defined accountability & governance structure for SHA, PCT and provider • National Programme Centre oversees QA function • NWSHA coordinators now recruited; Rebecca Till started 17th May & Sandra Smith starts 1st July

8. Newborn Hearing Screening • Full roll-out of Programme across England by 2006 • Recognised as one of world leaders in Newborn Hearing Screening • Has one of the best clinical IT systems in NHS • Patient choice more important than uptake rates • To ensure equality of access & reduction of health inequalities

9. Programme Aims • To offer informed choice • To offer quality screening to the parents of 99% of babies born • To identify all children born with moderate to profound permanent bilateral deafness within 4-5 weeks of birth • Babies referred from Programme should receive full audiological assessment within 4 weeks of screen • To promote and develop family friendly integrated services which support effective early intervention for deaf children

10. Newborn Hearing Impairments Explained • On average every week in England • 12,500 babies are screened • 270 (2%) babies are referred for audiological assessment • 15 babies identified with a permanent childhood hearing impairment

11. Patient Pathway…

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13. Aim of programme including mission statement Quality standards Newborn Hearing Screening care pathways Quality assurance Internal review and audit INTRODUCTION 13 13

14. INTRODUCTION Risk management Cross boundary cooperation/Service level agreements Responsibility of the NHSP care programme centre Reporting structures Planning for the future 14

15. AIM   Within the context of the Newborn Hearing Screening Programme the aim is to ensure that the whole screening pathway including associated follow on services is functional and safe. MM 15 15

16. MISSION STATEMENT High quality Early identification Family friendliness Parental empowerment Quality assurance which encompasses quality standards MM 16

17. QUALITY STANDARDS Newborn Hearing Screening Sites are externally assessed via fourteen quality standards which have to be reached 17

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20. RISK MANAGEMENT Prevention of mistakes Management of risk Recording discrepancies Putting mechanisms in place to reduce mistakes 20

21. Risk management Parental satisfaction survey Screening coverage Audiology referrals Auditing Safe and functional IT systems 21

22. Information systems 22

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24. CROSS BOUNDARY COOPERATION Transferring babies out to other sites in optimum time scales Regional meetings Inclusion of other professionals 24

25. WHAT ARE THE RESPONSIBILITIES OF THE NHSP CARE PROGRAMME CENTRE? Support Guidance Risk management Ensuring that qualities are maintained over country 25

26. REPORTING MECHANISMS Regular reports NHSP trends End of second cycle of QA visits, What now? 26

27. FUTURE PLANNING Originally 122 sites now 116 Screening coverage Sites working together Lets make sure that we put our families first! 27

28. ANY QUESTIONS 28 28

29. Data & Performance • Trusts required to produce annual report – difficult to obtain copies • NHSP produce annual report • 2008/2009 annual report in brief: • Screening Equipment Data Quality (SEDQ) project led to successful equipment upgrade and replacements • Completed 1st round of Peer Review QA visits across England • Implementation of NHSP Trends performance reporting tool • Major improvements need to be made to ensure that screening coverage, audiological assessments, social care support and involvement of families of deaf children in the development of services across England, meets the quality standards

30. Screen Decline Rate – 2009/2010 (Trends)

31. Screen Incomplete Rate – 2009/2010

32. Screen Complete by 4 Weeks after Birth – 2009/2010

33. Total Audiological Referrals from Programme – 2009/2010

34. Quality Assurance • Robust QA process in place managed by national programme centre • 1st cycle of Peer Review QA visits completed • 2nd cycle is underway • Highly effective eSP IT system used by local programmes • NHSP Trends performance monitoring tool

35. QA Site Reports 2008/2009

36. Future Developments • 3rd cycle of Peer Review QA visits • eSP improvements to include new audiology pages and new appointments system • Replace Echocheck screening equipment at community sites by 2010 • Replace Echoport screening equipment in hospitals by 2011

37. Questions/Comments • With regard to QA, how do we assure our Boards that local programmes run satisfactorily? • Develop set of recommendations for DsPH re lack of screening data from local programmes (for all antenatal & newborn programmes)

38. Thank You