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Surveillance, Epidemiology, and End Results (SEER) Program

Surveillance, Epidemiology, and End Results (SEER) Program. http://seer.cancer.gov/ Ben Hankey: bh43a@nih.gov. SEER Program – Geographic Coverage. SEER Program - Population Coverage. SEER Program - Population Coverage. SEER Program.

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Surveillance, Epidemiology, and End Results (SEER) Program

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  1. Surveillance, Epidemiology, and End Results (SEER) Program http://seer.cancer.gov/ Ben Hankey: bh43a@nih.gov

  2. SEER Program – Geographic Coverage

  3. SEER Program - Population Coverage

  4. SEER Program - Population Coverage

  5. SEER Program • Including expansion registries, SEER covers 26% of the total US population

  6. SEER Program – Quality Control • Quantitative measures of data quality, completeness, and registry performance • Goals and standards for data quality

  7. SEER Program – Uses of SEER Data • Descriptive Studies • Reports • WEB access to cancer statistics • Hypothesis generation • Trends in rates • High/low rates in pop subgroups • Race/SES/geography • Impact of cancer control interventions • Mammography/PSA • Assessment of efficacy

  8. SEER Program – Uses of SEER Data • Patient survival studies • Identification of prognostic factors • Validity of staging systems • Demographic differences • Treatment issues • Clinical trials

  9. SEER Program – Uses of SEER Data • Linkage to other databases • Vital status • CMS • Cohorts • Risk factors including environmental exposures • Appropriate time lag • Assumptions

  10. SEER Program – Uses of SEER Registries • Rapid Response Surveillance Studies • Patient interviews • Biological material • Discard Repositories • Statistical methods • Surveys • Linkage with other databases • Patterns of care • Diffusion of treatments

  11. SEER Program – RRSS 2003 • Rapid Response Surveillance Studies to be funded this year • Estimating Attributable Risk For Immediately Modifiable Breast Cancer Risk Factors Using Surveillance Data • Follow-Up Care Use By Survivors (Focus) • Geographic And Temporal Variation In Prevalence Of Established Breast Cancer Risk Factors, 1988-1999 • Weight, Physical Activity, Diet & BC Prognosis (HEAL) • Does Use Of Alternative Medicine Delay Treatment Of Head And Neck Cancer • Impact Of Racial Differences In Health Care Usage, Socioeconomic Status And Co-Morbidity On Prostate Cancer Progression/Recurrence And Survival • Prognostic Value Of Genomic Instability In Colon Cancer • Race, Socioeconomic Position, Immigration And Neighborhood Effects On Cancer SEER Cancer Registries • Reducing Reporting Delay And Reporting Error In Melanoma Surveillance • Use Of State Motor Vehicle Records To Evaluate Options For Default Geocoding Of Patient Address At Diagnosis • Patterns Of Care Study - Diagnosis Year 2002 - Fiscal Year 2003 • Prostate Cancer Outcomes Study • Assessing the Utility of Medicare Claims to Identify Cancer Recurrence • Web-Based Training for Cancer Registration and Surveillance

  12. SEER Program – Publications • SEER bibliography on WEB • 4,235 citations • 3,521 in scientific journals

  13. Surveillance Research – Statistical Methods · Cancer Control Practices and their Effect on the Cancer Burden. · Cancer Progress Measures. · Solutions for Quantitative Problems in Cancer Surveillance and Control. · Geographic Information Systems, Spatial Analysis, and Data Visualization. · Program Evaluation, Meta-Analysis and Outcomes Research. · Survey Methodology, Design & Analysis. · Population Risk Assessment Methodology. · General Statistical Methodology

  14. Methods and Software for Population-based Cancer Statistics http://srab.cancer.gov/software/

  15. Cancer Control – Development of Tools • PLANET (Plan, Link, Act, Network with Evidence-based Tools) • http://cancercontrolplanet.cancer.gov/index.html • State Cancer Profiles • http://statecancerprofiles.cancer.gov/ • Collaborative effort with CDC • Utilization of advances in presentation graphics and statistical methods

  16. SEER Program – Population Problems • Census Bureau • Refusal to release population estimates at census tract level because of confidentiality concerns • Pressure from outside organizations on NCI to provide cancer statistics on racial groups

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