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A National DBS Clinical Research Database

A National DBS Clinical Research Database. The development of a participant-specific data collection system. Brain Stimulation Symposium 8th November Customs House, 399 Queen Street, Brisbane. Rationale for a national database. A key component.

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A National DBS Clinical Research Database

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  1. A National DBS Clinical Research Database The development of a participant-specific data collection system. Brain Stimulation Symposium8th NovemberCustoms House, 399 Queen Street, Brisbane

  2. Rationale for a national database

  3. A key component • Provide an efficient and high quality method to collect data (esp questionnaires), to enter data into a secure server and eventually to analyse data obtained from • Parkinson’s disease participants • Care givers • Clinicians/researchers

  4. Issues around data collection and storage • Devices • Internet connectivity • Confidentiality of data • Ease of use Make text bigger!

  5. Devices • iPad/Android • Windows Tablet • Windows Laptop

  6. Confidentiality of data • Microsoft Access • Windows script • Open SSL • Zip encryption • Cloud storage

  7. Ease of use • Includes on screen instructions • Using standard input controls • Large fonts and colours • Styluses • Testing

  8. Make wider& move away from edge of screen Question & fields closer together Make all text larger

  9. What’s next • Testing! • Web based reporting and administration • Choice of input for each participant • Tablet: stylus, on screen keyboard, touch screen • Laptop: mouse, keyboard, touch screen, trackpad • Paper & pen

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