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Patient association, chapters, self support groups , programs. Zalatnai Klara - HOPA EPF Autumn Regional Advocacy Seminar for Patient Leaders Budapest, Hungary 25-26-2 October 2010. Introduction of HOPA. Based in Budapest Set up in 1998 NGO non profit umbrella organization 25 chapters
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Patient association, chapters, self support groups, programs Zalatnai Klara - HOPA EPF Autumn Regional Advocacy Seminar for Patient Leaders Budapest, Hungary 25-26-2 October 2010
Introduction of HOPA • Based in Budapest • Set up in 1998 • NGO non profit umbrella organization • 25 chapters • More than 2000 patients across the country • Vision: • Decreasing number of fragility fractures • Improved quality of life of the patients http://www.obme.hu
Health education programs, campaigns about Prevention Early detection of osteoporosis Progression of the disease could be stopped Patients’ involvement In decision making process Lobbying Capacity building Key issues
Major events of HOPA • WOD Program • Osteoporosis Civilian Forum • Joint program with the Rehabilitation Section of Osteoporosis Medical Society
Major programs of HOPA • Joint program with the Rehabilitation Section of Osteoporosis Medical Society • April 2009 • Funny Role-playing …. Patient Education and Counseling • The art of the Therapy
OsteoporosisCivilian Forum May 2110 It happened to me - what about the quality of life? Major programs of HOPA
WOD Program October 20, 2110 Don’t miss the signs of breaking spine Major programs of HOPA
It is never too late - Extend / http://www.extend.org.uk