1 / 21

Setting up patient and relative support groups

Setting up patient and relative support groups. Peter Gibb Chief Executive ICUsteps. Mo Peskett Chair ICUsteps. The need for support. Why?. Onset of critical illness Physical and Psychological Impairment Inequalities in rehabilitation Cost Socio/Economic Burden Change and adapting.

weldon
Download Presentation

Setting up patient and relative support groups

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. Setting up patient and relative support groups Peter Gibb Chief Executive ICUsteps • Mo Peskett • Chair • ICUsteps

  2. The need for support

  3. Why? • Onset of critical illness • Physical and Psychological Impairment • Inequalities in rehabilitation • Cost • Socio/Economic Burden • Change and adapting

  4. Physical effects • Muscle wastage • Difficulty swallowing • Taste changes • Hair loss • and more

  5. Psychological effects • Paranoia • Nightmares • Vivid dreams • Hallucinations • Cognitive dysfunction • PTSD • Delirium

  6. Effect on families

  7. Follow-up

  8. Working in partnership • Invitations to ex-patients and relatives • Tap into reservoir of goodwill • Establish support group • Inaugural drop in

  9. Publicity • Logo • Posters • Website • Follow-up • MKGH media briefing

  10. Drop in - The reality

  11. Spreading the message • Nursing in Critical Care article • Drop in visitors • Intensive Care Foundation

  12. The Five Step Plan • Establish a core group • Define a group structure • Agree a support method • Drop in practicalities • Funding needs

  13. Establish your core group • Patients and relatives out of ICU for 6-18 months • Agree your objectives • Meet at least 3 - 4 times to establish group bonds

  14. Define group structure • Partnership between ex-patients and health professionals • Independent • Organisation type • CVO support and advice

  15. Agree support method • Drop ins • Alternative options

  16. Drop in practicalities (1) • Venue • Frequency • Duration

  17. Drop in practicalities (2) • Timing • Publicity • Layout

  18. Drop in practicalities (3) • Supplies • Roles • Insurance

  19. Funding needs • Support groups have minimal funding needs • Contact local CVO for grant information • Sponsored events

  20. ICUsteps local groups • Members of ICUsteps • Independent • Startup grants • Support network • Broader opportunities

  21. Thanks for listening • mo.peskett@icusteps.org • peter.gibb@icusteps.org • http://icusteps.org • @ICUsteps

More Related