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Envision 2020

Envision 2020. Strategic Planning for Individuals with Special Health Care Needs July 19, 2011 State Implementation Grantee Meeting Baltimore, MD. Celebrate 2010. The National Survey of Children with Special Health Care Needs (NS-CSHCN 2005-06)

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Envision 2020

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  1. Envision 2020 Strategic Planning for Individuals with Special Health Care Needs July 19, 2011 State Implementation Grantee Meeting Baltimore, MD

  2. Celebrate 2010 The National Survey of Children with Special Health Care Needs (NS-CSHCN 2005-06) • Family Partnership and Satisfaction Status: 57% • Access to Medical HomeStatus: 47% • Access to Affordable Insurance Status: 62% • Early and Continuous ScreeningStatus: 64% • Access to Community Based Services Status: 89% • Services to Transition to AdulthoodStatus: 41% (

  3. Celebrate 2010 Family-centeredness and cultural competence recognized as a standard of care: • Principles and definitions in place, • Measurement strategies developed and implemented; • Strategies and tools for improvement emerging, including integration of principles with EMR, • Evidence-base emerging.

  4. Celebrate 2010 Medical Home recognized as a standard of comprehensive, coordinated care: • Joint Policy Statement • Closely linked with and conduit for Continuous Quality Improvement, • Expanded to adults as well as children, • Demonstration programs in almost every state, • Health plans, private sector leading the way now, • Tools in place and evidence emerging.

  5. Celebrate 2010 Unprecedented progress on financial issues important to CYSHCN: • CHIPRA - new funding, state expansion options, including enhanced scope of benefits and pediatric health care quality incentives, • The Family Opportunity Act (FOA)-Medicaid programs can offer a buy-in option for families, • Affordable Care Act - tremendous impact on adequacy of insurance for CYSHCN and their families.

  6. Celebrate 2010 Early and continuous screening expansion and improvement: • Serving the Family from Birth to the Medical Home: Report from the Newborn Screening Task Force (2000), • Expansion of newborn screening core panel to 29 conditions, • Newborn hearing screening for all infants, • New models and tools for screening in the medical home, • Bright Futures Guidelines

  7. Celebrate 2010 Access to community services organized for easy use by families: • Innovative demonstration of community models of service delivery (Communities Can,(2000); Champions for Progress) • Application of Continuous Quality Improvement tools, • “Money follows the person” models of systems change, • Continuing emphasis on community inclusion.

  8. Celebrate 2010 Growing recognition of the importance of health care transition for youth with special health care needs: • Consensus Statement on Health Care Transitions for Young Adults with Special Health Care Needs (2002), • Coming Soon: "Supporting the Health Care Transition from Adolescence to Adulthood in the Medical Home“, • Youth advisory councils/youth/young adult leaders at the national and state level, • Emerging innovative models of care for youth and young adults with special health care needs.

  9. Health System Community Health Care Organization (Medical Home) Resources and Policies ClinicalInformationSystems Care Partnership Support DeliverySystem Design Decision Support Timely & efficient Family -centered Evidence-based & safe Coordinated and Equitable CMHI Functional and Clinical Outcomes Care Model for Child Health in a Medical Home Supportive, Integrated Community Informed, Activated Patient/Family Prepared, Proactive Practice Team Prepared, Proactive Practice Team

  10. Envision 2020 Charge: • Build on the success of the past decade to Envision the next: • What should these systems constructs look like in 2020? • What is in place for the systems constructs that we can build upon for the next decade? • What can we as partners do or influence to make a significant move forward?

  11. Envision 2020 Charge: • Consider how emerging trends and issues should be addressed from a systems perspective: • Life course • Health care reform • Quality improvement • Cultural competence • Health information technology

  12. Envision 2020 Charge: Criteria to Consider: • Relevance • Compatibility • Efficacy • Regional and National Significance • Outcomes and Potential Impact • Sustainability

  13. Envision 2020 Charge: • Be Innovative • Be Specific • Be Creative • Think Beyond Title V

  14. Optimal Quality of Life Direct Enabling Population-Based Infrastructure L. Person 1/26/10

  15. Envision 2020 “True north lies in the experience of patients, their loved ones, and the communities in which they live” (Don Berwick)

  16. Envision 2020 Let us remember as each of us makes decisions that will affect children- whether we are parents, educators, health professionals, or government officials-it is our duty to consider if that decision either affirms or denies a child’s most basic human rights” (Polly Arango)

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