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UICC Project My Child Matters. By Hany Abdel Rahman, MD Lecturer of Pediatric Oncology NCI – Cairo University. Project description. Submission date : September 2005. Accepted : December 2005
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UICC ProjectMy Child Matters By Hany Abdel Rahman, MD Lecturer of Pediatric Oncology NCI – Cairo University
Project description • Submission date: September 2005. • Accepted: December 2005 • Title of the Project: Education of patients, families and society and promoting awarness of pediatric oncolgy care and support in Egypt. • Duration: 1 year (may be extended for a 2nd year).
Objectives • Educate patients, parents & society at large. • Raise awarness of patients and their familiers. • Remove stigmata associated with childhood cancer.
Target population • Sick children with cancer. • Parents and siblings of sick children. • Health care professionals. • Society at large.
Plan of Action • Patients and their familiers. • Medical Milieu. • Society at large.
Plan of Action • Patients and their familiers: • Videotapes. • Personal interaction. • Psychological support.
Plan of Action • Medical Milieu • Development of video tapes, CDs. • Training courses. • Publishing data though web site.
Plan of Action • Society at Large • News paper campaign & inserts. • TV clips and documentaries. • Lectures directed to the society at large.
Monitoring and Evaluation • Indirect: • Number of patients/mothers seeing the tapes. • Follow up teams. • Feed back and monitoring behavioral changes. • Direct: Pre and Post testing.
Sustainability • Other cancer centers in the country. • Duplicate in the region.
Rules and regulations • June 2006; project has not commenced = reimbursement of the funds. • December 2006; objectives acheived = 2nd year allocation. • Monitoring member from the UICC (mentor).
Advantages/benifits • Being audited = quality control of services. • Team approach for; physiciens, pscychologists, data manager & media . • Gain the respect of international organisations. • Benifits for the patients, families, health-care team.