2000 National Survey SUSENAS Republic of Indonesia Case Study, Part 1: Disability Findings

1. 2000 National SurveySUSENASRepublic of Indonesia Case Study, Part 1: Disability Findings Senda Benaissa, M.P.H Gallaudet University

2. Disability as a Focus Study Part 1 • Using national surveys to learn about people with disabilities in a particular environment • Analyzing areas such as education, health, labor, policy, socialization, service, etc., and how these impact people with disabilities (using ICF model) Part 2 • Exploring the interrelations between aspects of disability and poverty • Providing proper services to meet needs (reducing burden and poverty)

3. Survey and Census • Disability data collected from two surveys: • Core: Core Characteristics of households and household members (k) 1999 • Module: Household Socio Culture and Education (MSBP) 2000 (latest surveys (2003) are existing but year 2000 is available in English version)

4. Creating a disability target group • Due to limited source information in the national survey, the disabled group is categorized by a few physical defects rather than functional activities.

5. Physical Defect Handicap 743 (40.3) Blind 314 (17.0) Mental Defect 247 (13.4) Deaf 222 (12.0) Mute 132 (7.2) Psychotic 126 (6.8) Deaf and Mute 59 (3.2) Total Physical Defect (module) 1845 (.8) Total population of household 241,195 Total Physical Defect (core) 4,639 Total population of household 778,168

6. International Classification of Functioning, Disability and Health (ICF) Poverty Poverty Poverty

7. Why using ICF model • Measurement tool that can be used widely abroad • Measure functioning in society, rather than individual’s limitation • Identify and measure the effect of the physical and social environment on the disadvantages that disabled people experience • Health & Disability and Poverty have a strong association

8. Age and disabled • The prevalent working age group is 20 and 54, regardless of their disability status. • As expected, 47% of disabled people are in the same working age.

9. Not in School (7-24 yrs old) • 17 % of 7-24yr old disabled people reported they are ashamed of themselves and don’t like going to school

10. Social Services Complaint health problem (3 months) Receiving social service

11. Employment Status

12. Key items that may apply to the relationship between disability and poverty • Nature • Accident/Disaster • Disease Physical defect • Listen to radio • Watch TV • Read • watch/do artistry show • Exercise Participate organization • Participate social activity • Received social services • Number of working days • Earning income • Activities with parents • Active in school • School transportation • Sport at school • Household’s school expense • Preschool education Income use for • Taking classes • Distance between school and home • Difficulties in school financing • Scholarship/dispensation • Supplement food in school • Working • Dropped out school • No money for school • read/write • Do some activity • Breast feeding • Permanent job • Finding job • Disrupt work, school • Duration of disrupt • School participation • Dropped out • Family planning service • Expenditures to get family planning service • Highest level of education • Highest grade ever attended • Days of work • Self treatment • Cost of self treatment • Criminal/violation victim • Status of home • Obtain drinking water • Food • Education expense • Health expense • Clothing, footwear • Durable goods • Raise livestock • Land area

13. ICF model in Module Survey

14. ICF model in Core Survey

15. Next Step • Using the ICF model, poverty can be analyzed to: • Explore the incidence, severity of disability and functioning • Explore the social and physical environment • Explore the limitations on activities and restrictions on participation • Explore the availability of services