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Data Reuse Agreements (DRA)

Data Reuse Agreements (DRA). Jean Stanford Arnon Rosenthal, PhD Peter Mork, PhD. MIP 2010 Approved for Public Release. Problem.

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Data Reuse Agreements (DRA)

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  1. Data Reuse Agreements (DRA) Jean Stanford Arnon Rosenthal, PhD Peter Mork, PhD MIP 2010 Approved for Public Release

  2. Problem • The Office of the National Coordinator for Health Care IT (ONC) is spending roughly $20 billion* to encourage hospitals and providers to adopt electronic health records (EHRs). • To get funded, they must be able to demonstrate interoperable data exchange with other providers while respecting patient privacy policies • There is no electronic means to manage patient privacy policies, access them in real time or alert patients that their records are being requested • It’s still on paper. *HITECH Fact Sheet at http://www.himss.org/content/files/12_04_09_ARRAHITECHHIE_FactSheet.pdf

  3. Background DoD VA Example: Sgt. Bob has records at the VA and DoD health care facilities and with private sector pharmacies & physicians. Consent forms are needed to share data across these systems.

  4. Objective • Provide the framework for meaningful, granular, expression of patient consents • Provide a user interface for patients and providers to access at their convenience, through a browser or mobile device • Provide nationwide patient consent capture and management • Provide nationwide provider record request capability • Request for specific patient record • Determination of fit with patient consent • Provide a patient-viewable log of consent requests and recommended disposition

  5. Activities • Developed use cases • Conducted literature review • Developed operations concept • Developed user interface • Integrated with ESP program to provide the policy reasoning and enforcement facility needed to implement the consent policies

  6. Conceptual Architecture Request Server (e.g., hData) Browser VA Record Holder Server Consent Server EHR Policy Enforcer Consent DB Policy Reasoner

  7. Consent Server User Interface

  8. Impacts • Sponsor Presentations: • Office of the National Coordinator • Substance Abuse and Mental Health Services Administration • Department of Veterans Affairs • Other Discussions: • Healthcare Information and Management Systems Society • GE Healthcare • United HealthCare • Open Source: • https://sourceforge.net/projects/kaironconsents/

  9. Future Plans High Integrate with State Mandates Automated Enforcement Intelligent Redaction Eliciting Patient Preferences Integrate Care Relationships Implemented Technical Complexity Under Development Patient Review & Approve Grand Challenges Credential Matching Preemptory Access Audit Low Accepted Practices Policy Maturity Inchoate

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