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The GenEd Project A European Survey of the genetic educational needs of non genetic health professionals Research questions and phase I results Kirsty Challen BSc MBChB On behalf of the GenEd research group. Research supported by the 5 th framework programme of the European Community.
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The GenEd ProjectA European Survey of the genetic educational needs of non genetic health professionalsResearch questions and phase I resultsKirsty Challen BSc MBChBOn behalf of the GenEd research group Research supported by the 5th framework programme of the European Community. QLG4 –CT-2001-30216 Prague 6th May 2005
Background to GenEd • Wide variation structure of health & specialist genetic services. • UK: patchy undergraduate education. • UK: genetic counselling by non-geneticists has problems. • Approaches to genetic counselling vary between countries & specialties. • US professionals: consensus competencies. Prague 6th May 2005
Research aims “to conduct an empirical assessment of educational needs and priority topics for education in genetics among primary care providers and other non-genetics healthprofessionals” • Phase II • GPs/Midwives/Obstetricians-Gynaecologists/Paediatricians. • Current genetic practices and service provision. • Confidence in their skills to work with individuals and families at risk of genetic conditions. • Own suggestions for the content of genetics curriculum. • Phase I • Responsibility for setting, assessing and delivering medical education: undergraduate, postgraduate and continuing. • Genetics content at 3 levels. • Involvement of genetic professionals at 3 levels. Prague 6th May 2005
The GenEd Research Group Prof Leo ten Kate Dr Ulf Kristofferson Dr Hilary Harris Dr Claire Julian-Reynier Prof Irmgard Nippert Prof Jörg Schmidtke Emeritus Professor Rodney Harris and Caroline Benjamin Lina Florentin György Kosztolányi Vaidutis Kucinskas Giovanni Neri Maria Ramos-Arroyo Jacek Zaremba Elizabeth Anionwu Ysbrand Poortman Alistair Kent Wolfgang Holtzgreve Celia Delozier-Blanchet Prague 6th May 2005
Methods • Medical faculties. • Government departments (health/education). • Examination syllabi. • Published curricula. • Professional journals. • Specialty organisations. • Regulatory bodies. Prague 6th May 2005
Undergraduate medical education • 6 – 43 institutions (2-39). • 5 – 6 years +/- internship (6). • National curriculum: • Detailed • Thematic • None • Genetics Prague 6th May 2005
Post-graduate (specialist) medical education • 32 – 62 specialties (30-56). • Genetics a specialty in all 5 countries (not Greece/Spain). • National specialty curricula: • Available • Guidelines • None • Primary care as a specialty • Established • New • Family doctors : general/internal medicine specialists. Prague 6th May 2005
Genetics in specialist medical education Prague 6th May 2005
Continuing medical education • Compulsory in Netherlands, Germany, UK • France: annual priorities • Germany: journals • Netherlands: 5 yearly re-registration • Sweden: developing • UK: in flux! Prague 6th May 2005
Midwifery & Nursing Prague 6th May 2005
Just a taster Prague 6th May 2005
And on to Phase II… • Specialities most likely to encounter a patient at the first potential point of a genetic diagnosis. • GP • Paediatrics • Obstetrician/gynaecologists • Midwives Prague 6th May 2005
Phase II methods • Postal questionnaire constructed by GenEd team. • Some written/telephone reminders. • Random sample of specialists. Prague 6th May 2005
Phase II responses Prague 6th May 2005
Questions? Prague 6th May 2005