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Freedom of choice in substance abuse treatment . First data from a Swedish study. Kerstin Stenius and Samira Radwan SoRAD , Stockholm university and Ersta-Sköndal. Freedom of choice and social rights.
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Freedom of choice in substanceabusetreatment. First data from a Swedishstudy Kerstin Stenius and SamiraRadwan SoRAD, Stockholm university and Ersta-Sköndal
Freedom of choice and social rights • Nordicmodel: collectivelygranted and extensive social rights. Universalism • Freedom of choice: citizens’ participationin production and delivery, route to autonomy, empowerment. Right and duty to choose as an individual • Linked to marketsolutions: choicebetweenpublic and private . With (hopes for) shrinkingwelfarebudgets • Howdoesthisideologyeffectdifferentgroups of citizens, inlcudingthtepotentiallyundeservingpoor?
Whatdoesfreedom of choicerequire? • Possibility to choosebetweenclearlydistinguishablealternatives • Possibility to choosebetweenalternativesthathavedifferentmeaning for the user • Autonomy: the individualshallhave the possibility to reachwhathe/shedefines as herdesiredresults (for instanceinfluencekind, amount and content of tx) (Bavetta 2004)
Data • Threetownswithestablishedpolicy of freedom of choice • Threegroups of citizens: elderlywith home care, youngpersonswhohavechoosenhighschool and persons in substanceabusetx • Structuredinterviews, personalinterviews, focusgroups, expertinterviews and policymaterial • Citizengroupsexperiences of choice • Hypotheses: withinallthreegroups, the possibility and wish to choosevaries; the expereincedbenefits of choicevariesbetween and withingroups; freedom of choiceeffectscitizens’ participation and influence and thustheircitizenship
Questions • Whatare the consumersexperiences of and attitudes to choice? • Is thererealchoice for persons in substanceabusetreatment? • Aretheredifferent and distinguishableservicealternatives? • To whatextentcan the usersinfluence the contentortreatment, orexitfromtreatment?
Attitudes to choice • 45 % veryorrathersatisfiedwithpossibilities to choosetx , 25 % didnotknow. Moresatisfactionamongoutpatient and personswithhigherincomes • Almost 80 % veryorratherimportant to choosebetweendifferentproviders of treatment
Are there alternatives? If you thinkabouttreatment options in substance abuse treatment in your municipality, would you say that they are:
Waitingtime • 16 % had to waitmorethan 3 months for the treatmenttheyneeded (23 % in inpatient) • 78 % in out-patientdidnothave to wait at all (35 % in inpatient)
Did you have alternatives? Howmanysimilarcareplacescould you choose from when you startedthistreatment?
Wherethere real alternatives for you? Did you thinktherewas a differencebetweenwhattx the providersoffered? Out-patIn-pat Total
Information • 60%: enoughinformation to choose • 36 % said the informationabout the txplacewas in accvordancewithhowitwas (49 % out-pat, 29 % inpat) • Mostimportantsource of inf. wasstafffrommunicpality, txproviders, and internet for outpatient • Nacka: morechoice and moresatisfiedwithinformation)
”Autonomy” • 40 % hadchosentxthemselves (50 % out-pat, 30% inpat) • 20 % hadchosentogetherwith social servicestaff (10 out-pat, 28 % inpat) • Half of respondentswouldturn to txstaffiftheywereunsatisfied • 60 % didnotknowwhom to turn to iftheywanted to formallycomplainovertheirtx • Iftheyhadarticulatedcritique (more common amonginpat) itwasmore common thannotthatithad led to change • ¼ hadchangedtx, a majority of themthoughtitwaseasyorfairlyeasy
Conclusions • 1/3 had a realchoice – the majoritydidnotknowiftherewas a diff. Bewteenalternativeordidnotchoose • 40 % didnotthinktheyhadenoughinformation (real and distingusihablechoice) • Autonomy. Diffbeteenin- and outpatient. Outpatcouldmoreinfleuncelength and content. Txstaffor social workerswere the naturalpatries to turn to for complaints – fewknewaboutformalcomplaints
Cont. • Unevendistribution of choice, benefits of choice and influence • In longerinterviewsmoreexamples of bothpossibilities to influence, mainlythroughgoodcontactswith social serviceortxstaff, and presssuresordramaticlack of choice • Substanceabusers as a groupnotpoliticallyactive • Valfrihet as a conceptdoesnotclarify the realdilemmas for many in thisgroup