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Internet Use, Information Needs and Quality of Life Among Cancer Patients

Internet Use, Information Needs and Quality of Life Among Cancer Patients. Survey of University of Michigan Cancer Center Patients and Caregivers. Thank You. Cancer Center Operations Group Patient and Family Support Services Clinic Team Leaders Quality of Life Group CanSORT QUICCC

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Internet Use, Information Needs and Quality of Life Among Cancer Patients

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  1. Internet Use, Information Needs and Quality of Life Among Cancer Patients Survey of University of Michigan Cancer Center Patients and Caregivers

  2. Thank You • Cancer Center Operations Group • Patient and Family Support Services • Clinic Team Leaders • Quality of Life Group • CanSORT • QUICCC • Lisa Smith, Matthias Kirch

  3. Health 2.0 • 80% of adult Internet users (113 million Americans) have searched for health information online. • 73% of health seekers say the Internet has improved the health information and services they receive • 35% of online adults use social media for health and medical purposes. • Online patient communities • Blogs, Testimonials • Connection to health care providers Citation: Pew American Life Survey 2006, http://www.pewinternet.org/Reports/2006/Online-Health-Search-2006.aspx?r=1

  4. Today’s Presentation • Internet and social media use • Information needs • Quality of life • Implications for Survivorship Care

  5. Research Questions • How do UMCCC patients use health information technology (e.g. computers, internet, social media) when dealing with cancer or cancer treatments? • What are the information and social support needs of UMCCC patients? • What are the major challenges to improving quality of life for UMCCC patients?

  6. MCancer Survey 2010 • Purpose: The purpose of this survey is to learn more about how patients and their family and friends find and use information about cancer. • Population: Adult cancer patients (age 18+) seeking care at the University of Michigan Cancer Center clinics and accompanying friends and family members during the time of survey collection • Setting: Clinic waiting areas throughout the Cancer Center • Study time period: August 2010 until early September 2010 • TODAY: adult cancer patient data

  7. Conceptual Framework • Pew Internet & American Life Project • HINTS Survey 2007 • New questions created for survey • Pew Internet & American Life Project • Janz & Piette: Baseline survey with LA SEER • Griggs et al. (2006) Information Needs and Sources for Distribution • Janz & Piette: Baseline survey with LA SEER • Griggs et al. (2006) Information Needs and Sources for Distribution • Fact G • SF36 Vitality Subscale • Distress Thermometer • Zarit Burden Interview Scale Perceived usefulness of Internet, cell phones & social media Information and social support needs Use of Internet, cell phones & social media Quality of life

  8. Results • Respondent characteristics • Internet use • Social media • Online activities • Online experiences • Information needs • Social support needs • Quality of life/Distress

  9. Results • Completed surveys: 1660 • Response rate: 75% • Total patients with cancer diagnosis: 1282

  10. Results: Gender

  11. Results: Age

  12. Results: Education

  13. Results: Race/Ethnicity

  14. Results: Cancer Diagnoses

  15. Results: Years since Diagnosis

  16. Results: Use of Information Technology * Among internet users

  17. Results • Respondent characteristics • Internet use • Social media • Online activities • Online experiences • Information needs • Social support needs • Quality of life/Distress

  18. Results: Internet Use

  19. Results: Internet Use

  20. Results: Internet Use

  21. Results: Internet Use

  22. Internet Use • Generally high levels of Internet use • Broadband access common • Experienced users • Expected associations with age and education • Little difference by gender • Over 2 in 3 cancer patients over the age of 70 have internet access • High rates of Internet use across cancer diagnoses

  23. Results • Respondent characteristics • Internet use • Social media • Online activities • Online experiences • Information needs • Social support needs • Quality of life/Distress

  24. Results: Use of Information Technology * Among internet users

  25. Results: Years of Use by Type of Internet User

  26. Results: Social Media

  27. Results: Social Media

  28. Results: Social Media

  29. Results: Social Media

  30. Social Media • Less than half of cancer patients using social media • Rapid adoption • New users • Substantial differences related to gender and age • Less difference related to education • Substantial differences in social media use for patients with different cancer diagnoses • Likely due to age and gender of patients

  31. Results • Respondent characteristics • Internet use • Social media • Online activities • Online experiences • Information needs • Social support needs • Quality of life/Distress

  32. Results: Searching for Cancer Information Online

  33. Results: Searching for Cancer Information Online

  34. Results: Online Activities

  35. Online Activities • Large majority of patients searching for themselves • Substantial differences related to gender, age, and education • Some differences in searching related to cancer diagnosis • “Reading” more common than “writing” • Formal participation in online communities/groups rare

  36. Results • Respondent characteristics • Internet use • Social media • Online activities • Online experiences • Information needs • Social support needs • Quality of life/Distress

  37. Results: Usefulness of Online Cancer Information

  38. Results: Usefulness of Online Cancer Information

  39. Results: Usefulness of Online Social Media

  40. Results: Usefulness of Online Cancer Information

  41. Results: Experience of Web Searches

  42. Results: Experience of Web Searches

  43. Online Experiences • The majority of cancer patients find online information to be useful • Social media currently much less likely to be perceived as useful • Perceived usefulness strongly related to age, particularly for social media • Currently Internet is rated as more useful for information about diagnosis and treatment and dealing with physical symptoms and less so for dealing with emotions, relationship, and family issues. • Positive and negative experiences common among patients looking for cancer information online

  44. Results • Respondent characteristics • Internet use • Social media • Online activities • Online experiences • Information needs • Social support needs • Quality of life/Distress

  45. Results: Information Needs

  46. Results: Information Needs

  47. Results: Information Needs

  48. Results: Information Needs

  49. Results: Information Needs

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