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F amilies, A dolescents & C hildren T eamwork S tudy 2

F amilies, A dolescents & C hildren T eamwork S tudy 2 . Ipswich Paediatric Diabetes Team C Wadham, HR Murphy, AJ Byard, TC Skinner, J Hassler-Hurst, J Buck, S Cradock, A Scott, G Rayman. Update on FACTS 2 … . 150 adolescents recruited 4 centres delivering - Ipswich

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F amilies, A dolescents & C hildren T eamwork S tudy 2

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  1. Families, Adolescents & Children Teamwork Study 2 Ipswich Paediatric Diabetes Team C Wadham, HR Murphy, AJ Byard, TC Skinner, J Hassler-Hurst, J Buck, S Cradock, A Scott, G Rayman

  2. Update on FACTS 2…. • 150 adolescents recruited • 4 centres delivering - Ipswich - Peterborough - Norwich - Coventry and Nuneaton • 3 - 4 centres potentially starting Sept ‘08 • Potential for 1 - 2 more sites

  3. Aim of programme………. To help the young person with diabetes cope better with diabetes by shared and informed decision-making in order for them to fulfil their potential.

  4. Evidence……………….. • FACTS 1 • Hvidore study Agreed Family targets responsibility

  5. Educator discussion……….. accumulated data discussion consensus Targets BG’s, HbA1c, sick days, CHO counting CLARITY & DOCUMENT

  6. Intended Outcomes………… • Explore and agree roles and responsibilities that promote family functioning. • Increased knowledge and opportunity to apply practical skills in relation to food choices and insulin dose adjustment. • Practice open family communication. • Explore issues around family conflict / promote conflict resolution and inter-dependence.

  7. Development of a philosophy…. • Discussion with external facilitator • Formalise • Spreading the word • Engage

  8. Key Educator Behaviours………………….. • Explore and build upon patient’s knowledge by the use discovery questions and of reflection • Support families to work together to enable goal setting with the child rather than FOR! • Safe environment to explore feelings / emotions and acknowledge distress

  9. Curriculum development…….. • 6 sessions 90 minutes duration skills training communication • External review to identify and reinforce key educator behaviours • Ongoing revision – dynamic and evolving BEHAVIOURS ARE KEY

  10. Behaviour 1Discovery questions • What do you think? • How do you feel about that? • What makes you say that? • Could you explain that further? • What would you like to happen in that situation? • How could this be achieved? • What does the rest of the group think? • It sounds to me as if you are saying….

  11. Behaviour 2Shared goal setting • Family responsibility questionnaire

  12. Behaviour 3Safe environment • Attitude / approach – informal, non-judgmental, humorous • Confidence - educator and participant • Variety of techniques – drawing, post-its, work stations, small group discussions

  13. Participant feedback……… • ”Helpful to let you know that talking is a big part of getting things right” and “also seeing how parents think and respond” (Young Person) • “Lots of value in hearing other’s experiences in all the sessions” (Parent) • “It was good cos there was bits just the kids could talk” (Young Person) • “I really enjoyed the time on the course, it made us both think about things from a different angle, and got us talking”(Parent)

  14. Thank you for your attention.

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