Interested in Research Participation?

1. Interested in Research Participation?

2. “We believe that the active involvement of the public in the research process leads to research that is more relevant to people and is more likely to be used.” and “Research which reflects the needs and views of the public, is more likely to produce results that can be used to improve practice in health and social care.” INVOLVE Web-Site (2010) Research Projects looking for Participants

3. NHS Research & Development Strategy The following is a quote from the Department of Health’s research strategy in 2006, about the importance of public involvement: “ We know from our experience that engaging patients and members of the public leads to research that is more relevant to people’s needs and concerns, more reliable and more likely to be put into practice.” Department of Health (2006)

4. Why do we need research? • Health and social care research can help to: • evaluate and improve services • identify people at risk of getting ill and help to prevent illness • test treatments to make sure they are safe and effective • ensure services and treatments are relevant to the public Research Projects looking for Participants

5. Getting Involved in Research Research Projects looking for Participants

6. Why involve patients in research? • You could offer a different way of looking at things • You can help make sure that the research findings are important to you and therefore to health care, public health and social care services as a whole. • You can help to ensure that money and resources aren't wasted on research thatjust measures things that professionals feel are important. Research Projects looking for Participants

7. How would it benefit me from being involved in research? • having a say in research that might affect me, my • family or friends • getting research done that is important to me • learning about research and the subject being • researched • meeting new people and developing my abilities • a chance to make a contribution Research Projects looking for Participants

8. How will taking part in research affect my treatment? • All NHS research will maintain your basic rights: • The right to refuse to participate. • The right to participate and then withdraw at any time without affecting your treatment. • The right to confidentiality of your personal details and data provided. • All of your data is protected and stored securely. • Feedback on findings of the study. Research Projects looking for Participants

9. Current Research Projects Current Research Projects looking for Participants

10. Would you or someone you know want to get involved in research for ADHD? • Some studies have shown that Attention Deficit Hyperactivity Disorder (ADHD) can be inherited, yet attempts to find genes that prove this have not been conclusive. • Cambridge University are looking to identify brain abnormalities in ADHD. Project looking for Participants for ADHD Research

11. Am I suitable to take part in this study for ADHD? Are you: An individual with ADHD? Have you got a close relative (i.e., biological brother or sister, parent or child) willing to participate too.? Fluent in English? If so then you may be appropriate for this study… Project looking for Participants for ADHD Research

12. What does the study involve? • The total procedure will take 3.5 to 4 hours, over two days of testing. • The first day will involve the collection of detailed background and information about you, as well as short tests to collect psychological and neuropsychological information. • The second day will be dedicated to an fMRI scan. Project looking for Participants for ADHD Research

13. If I take part in this ADHD study will I get paid? Payment for time: You will be paid £11 an hour for time spent and attending the testing session. Expenses: Travel costs incurred will be paid separately for participants from outside Cambridge. If you are interested or have any further questions please contact Cherie Morgan: cherie.morgan@sept.nhs.uk or 07826950567 Projects looking for Participants in ADHD Research

14. Oasis study Do you • Have a diagnosis of schizophrenia • OR experience episodes of mania associated with bipolar disorder? • Are you prescribed the antipsychotic medication ‘Seroquel XL™’ or ‘quetiapine IR’? Then you might be suitable to take part in this study. • What does it involve? Your care team will fill in 2-3 questionnaires relating to your experiences about taking your medication. You will do this together during one of your appointments. If you are interested or have any further questions please contact Cherie Morgan: cherie.morgan@sept.nhs.uk or 07826950567

15. ADE study “Experience of people with bipolar disorder and psychiatrists in the use of the Mental Capacity Act to plan in advance for the severe episodes of illness”. You may be eligible to take part if you • Are aged 18 years or over • Have been diagnosed with bipolar disorder • Live in England If you are interested or have any further questions please contact Cherie Morgan: cherie.morgan@sept.nhs.uk or 07826950567

16. EVIDEM-E study Dementia can cause many problems including difficulties with memory and thinking. It can also cause changes in personality, mood and behaviour and these are called Behavioural and Psychological Symptoms of Dementia. The EVIDEM-E study looks into treatments that may be useful in reducing these symptoms. You may be eligible to take part if you have dementia or are a carer of someone with dementia.

17. EVIDEM-E continued What will happen to me if I take part? • You will be put in one of two groups • One group continues treatment as normal • One group will get a tailored exercise therapy over 12 weeks. • Your participation will help furthering our understanding of non-medical treatments for behavioural and psychological symptoms of dementia. If you are interested or have any further questions please contact Cherie Morgan: cherie.morgan@sept.nhs.uk or 07826950567

18. Interested in research because we are interested in you? Either: Speak to your Clinician at your next appointment to get a referral Or Call Cherie Morgan, Research Assistant on 078-2695-0567 Projects looking for Participants in ADHD Research