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Summary of strategic review process for development of current SP

Summary of strategic review process for development of current SP. Alliance Meeting 2010 GCU Strategic Review presented Group discussion to identify key objectives to inform development of strategic plan Alliance Meeting 2011 Draft Strategic Plan presented to members

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Summary of strategic review process for development of current SP

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  1. Summary of strategic review process for development of current SP Alliance Meeting 2010 GCU Strategic Review presented Group discussion to identify key objectives to inform development of strategic plan Alliance Meeting 2011 Draft Strategic Plan presented to members Group discussion on the draft plan Vision, Mission and Objectives confirmed Working groups established Working group review undertaken and report with recommendations submitted to board June 2012 Alliance Meeting 2012 Working group reports to members Board report on actions for 2013 Working group discussion on actions and working group responsibilities in 2013

  2. GOAL: A world free of ALS/MND TAGLINE/BRANDING: United in the worldwide fight against ALS/MND

  3. VISION: We will engage with our members, prospective members and other organisations to share resources globally, to advance awareness and to promote the support of people living with ALS/MND worldwide

  4. VALUES The Alliance is committed to the following values: • Our service is to the organisations supporting people living with ALS/MND • We will contribute to improving quality of life for people living with ALS/MND • We encourage, support and value innovation and research for people living with ALS/MND • We respect and value the contribution made by all members • We act responsibly, maintain professional integrity and engage and collaborate with the ALS/MND community worldwide

  5. MISSION STATEMENT Our Mission as the International Alliance of ALS/MND Associations is: • To promote optimal care and support for all people living with ALS/MND • To facilitate information exchange and education at an international level • To encourage collaboration, dissemination and translation of ALS/MND research

  6. Strategic Objectives 2012 to 2015 • To develop the operational structure required to achieve our objectives • To develop andenhance membership, partnerships and programs • To facilitate the exchange of information on ALS/MND care, education and research • To build a sustainable operating/funding model for the Alliance

  7. 1.To develop the operational structure required to achieve our objectives DRAFT ACTIONS • Renew agreement with MNDA until Dec 2012 • Investigate member org. willing to base coordinator • Develop ongoing plan for WG’s • Fundraising Plan to increase funds in short term – refer to funding WG • Develop ED position description • FRP to fund ED position

  8. To develop and enhance membership, partnerships and programs: Membership

  9. To develop and enhance membership, partnerships and programs: Partnerships

  10. To develop and enhance membership, partnerships and programs: Programs

  11. To develop and enhance membership, partnerships and programs: Programs - ctd

  12. To facilitate the exchange of information on ALS/MND care, education and research

  13. To build a sustainable operating/funding model

  14. Draft – objectives 2016 to 2019 Draft Greater focus on Advocacy and research – NB communications and awareness underpins all these objectives: • ADVOCACY:To influence communities, governments and other international organisationsto support the interests of plwALS/MND globally • MEMBERSHIP:To grow membership and promote the establishment of support organisations where none currently exist • 3. PARTNERSHIPS: To promote, support and enhance the Alliance Partnership program • INFORMATION: To facilitate, promote and review the exchange of information on ALS/MND care, education and research • FUNDING: To build a sustainable operating and funding model for the Alliance

  15. Benefits of being a member of the Alliance Why is the Alliance important to your organisation? Think about - what outcomes would you like the Alliance to achieve in the next 3 years related to this objective? Alliance membership

  16. Workshop and Group Discussion – 2015 To help us develop the Alliance Work Plan for 2016 identify one goal your group would like to focus on this year to help achieve these outcomes: Identified goal How do we get there? What will be the impact of achieving this goal? Break into 5 groups to focus on one of the strategic objectives:

  17. Draft – objectives 2016 to 2019 Draft Greater focus on Advocacy and research – NB communications and awareness underpins all these objectives: • ADVOCACY: To influence communities, governments and other international organisationsto support the interests of plwALS/MND globally • Sara and Carol • MEMBERSHIP: To grow membership and promote the establishment of support organisations where none currently exist • Kiki and Theresa • 3. PARTNERSHIPS: To promote, support and enhance the Alliance • Partnership program • Evy and Jens • INFORMATION: To facilitate, promote and review the exchange of information on ALS/MND care, education and research • Steve and Bob • FUNDING: To build a sustainable operating and funding model for the Alliance • Barb and Efrat

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