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Building effective partnerships

Building effective partnerships. Hilkka Kettinen Chairman World Headache Alliance 23/2/2010 - 4th IAPO Global Patients’ Congress. World Headache Alliance. WHA - increasing awareness, reducing burden. Headache disorders. Identifying the problem Headache disorders are real common

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Building effective partnerships

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  1. Building effective partnerships Hilkka Kettinen Chairman World Headache Alliance 23/2/2010 - 4th IAPO Global Patients’ Congress

  2. World Headache Alliance WHA - increasing awareness, reducing burden

  3. Headache disorders Identifying the problem Headache disorders are • real • common • occur everywhere in all age groups • burdensome • remediable

  4. Headache disorders • WHO ranks migraine alone 19th amongst causes of disability (World Health Report 2001) • Other primary headache burden combined, headache disorders are likely to be in top 10 • In E, approx. 180 million days absent from school or work because of migraine every day; estimated direct cost >20 billion euros p.a.

  5. The challenge: “It’s only headache.”

  6. Action in three stages • Acquire knowledge for action • Use knowledge to raise awareness • Exploit awareness to promote change

  7. Lifting The Burden A Global campaign to reduce the burden of headache worldwide www.l-t-b.org Director Dr. Timothy Steiner, London, UK

  8. History • The idea 1997, foundation of WHA; • 2000 a meeting at WHO, headache recognised; • 2001 World Health Report, migraine high in YLD;

  9. ...continued • 2004 Lifting The Burden launched, a formal partnership with WHO, WHA, IHS and EHF (professional NGOs); • 2007 Neurological disorders in public health; • 2009 LTB becomes an independent charity

  10. Lifting The Burden • opportunistic; • ambitious and realistic; • partnerships based on projects

  11. Eurolight - Highlighting the impact of headache in Europe - Pilot project in Luxembourg 2003- - Directed and initiated by Colette Andrée, Switzerland/Luxembourg, a patient representative

  12. Eurolight Financial support from EC (European Agency of Health and Consumers, EAHC) Hosted and lead by Center of Public Health Research, Luxembourg

  13. Partnership in Eurolight - 24 patient groups, hospitals, academic institutions; • associated and affiliated partners; • results and continuation in 2010

  14. Headache days and months • WHA: WHAM in September; • EHA: European Migraine Day of Action 12 September . National headache support groups

  15. Challenges in partnerships • finding agreement; • focus; • cultural differences; • requires leadership, one partner

  16. Lessons • Persevere; • Motivate your partners; • Stay focused but take opportunities; • Lead

  17. Thank you for your attention. h.j.kettinen.91@cantab.net

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