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Barriers and Solutions to Neonatal Follow-Up of High Risk Infants in the State of Utah

Barriers and Solutions to Neonatal Follow-Up of High Risk Infants in the State of Utah. Trainees: Juliana Briscoe, Sherrily Brown, Melissa Herzig, Kerry Prout, and Debbie Thomas. Author Note. The authors of this paper wish to acknowledge the faculty mentors for this project:

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Barriers and Solutions to Neonatal Follow-Up of High Risk Infants in the State of Utah

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  1. Barriers and Solutions to Neonatal Follow-Up of High Risk Infants in the State of Utah Trainees: Juliana Briscoe, Sherrily Brown, Melissa Herzig, Kerry Prout, and Debbie Thomas

  2. Author Note The authors of this paper wish to acknowledge the faculty mentors for this project: • Mentors: Sarah Winter & Vicki Simonsmeier • Family Consumer Consultant: Christine Evans • Core Faculty: Paula Peterson, JoLynn Webster, Gretchen Peacock, Heidi Lane, and Terry Pavia

  3. Problem • Low attendance rates at the Utah Neonatal Follow-Up Program (NFP) • Desire to know what is being done well in clinic • Desire to know what can be improved upon in clinic

  4. Goals • Identification of NFP attendance trends through quantitative data • Identification of NFP attendance barriers through qualitative data • Recommendations to the NFP team from research findings

  5. Quantitative Method • Current attendance trends were identified via data analysis of the NFP follow-up rates from the five largest referral Utah NICU facilities in 2011.

  6. Qualitative Method • Perceptions of program value • Identify potential barriers and solutions to NFP attendance • Baseline knowledge and value of program • Identify potential barriers and solutions to NFP attendance Family Focus Group (SLC & Ogden) Professional Focus Group (PCMC & McKay-Dee)

  7. Family Focus Group Findings

  8. Family Focus Group Findings

  9. Family Focus Group Findings

  10. Professional Focus Group Findings

  11. Professional Focus Group Findings

  12. Professional Focus Group Findings

  13. Professional Focus Group Findings

  14. Study Limitations • Lack of representation of target group families • Four focus groups with a small sample size • Lack of diversity

  15. NFP Attendance Barriers • Lack of education provided to families & NICU staff • Lack of communication between facilities • Lack of NFP and NICU communication • Distance of clinic locations • Medical vs. developmental priorities • Lack of parental understanding that development needs evaluation over time

  16. Recommendations for Improving NFP Attendance • Education provided to families & NICU staff • Communication between facilities • Improve NFP and NICU communication for family contact • Additional clinics

  17. Recommendations for Improving Clinic Satisfaction • Provide a NFP presentation to PCMC Grand Rounds • Feasibility of providers • Check off sheet and check out process • Post-appointment summary • Strategic communication plan • Scheduling consideration

  18. Suggestions for Further Study • Broaden the diversity of the focus groups • Target participants who are referred to the NFP, but do not attend or have not completed the program • Gather data from community pediatricians

  19. Trainee Recommendations for the URLEND Program • Exposure to and problem-solving of systemic, billing and policy issues related to interdisciplinary clinics • Increase opportunity and exposure to clinic administration and operations • Additional emphasis on diagnoses i.e. CP/Down’s Syndrome • Increase family interaction in an informal setting • Increase clinical sites for URLEND trainees

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