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What Will Our Child Actually Do ? Factors Affecting Compliance. K. Verdolini Abbott, Ph.D., CCC-SLP September 2010. http://www.babble.com/CS/blogs/strollerderby/2008/11/16-22/children-playing.jpg. Caveat: Terminology. Some people don’t like the term “compliance” (hierarchical model)
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What Will Our Child Actually Do?Factors Affecting Compliance K. Verdolini Abbott, Ph.D., CCC-SLP September 2010
http://www.babble.com/CS/blogs/strollerderby/2008/11/16-22/children-playing.jpghttp://www.babble.com/CS/blogs/strollerderby/2008/11/16-22/children-playing.jpg
Caveat: Terminology • Some people don’t like the term “compliance” (hierarchical model) • http://www.ark-of-salvation.org/pyramid.gif • Alternate terms • Adherence • Concordance (e.g., Bissell et al., 1997) • http://integressblog.files.wordpress.com/2009/09/handshake.jpg
Caveat: Measuring compliance • Problematic • http://ruler.magsinet.com/ruler_10_20.jpg
Adult literatureFactors increasing compliance (cites in Titze & Verdolini, 2010) • Findings • Perceived severity of health problem • Short duration of illness • High income • Unemployed • Urban setting • Transportation • Implications for kids • Many not be sharply aware of problem • Many referred with chronic problem • (Insurance issues?) • Child with time • ??? • Important
Adult literature, cont’d • Findings • Remembering • Positive attitude about disease • Confidence in treatment • Internal locus of control • Self-efficacy • Minimal side effects • Implications for kids • Help them to remember • Pump them up about the process • Give them confidence • You can do it! • You can do it! • Minimize side effects
Adult literature, cont’d • Findings • Family/social support • Information about disease and treatment (sometimes) • Clinician/patient match in information • Infrequent doses • Simple program • Written instructions • Follow-up • Implications for kids • Parent support critical • Education about disease and treatment process may help • Adapt level of information to child • Minimize exercises • Make it simple • Write out instructions • Follow-up therapy
Adult literature, cont’d • Findings • Clinician/patient interaction • Implications for kids • How we interact matters
Children proper • Distilling key points • Motivation • Remembering • Instilling confidence • Adapting info level • Minimize cosmetic s.e. • Keep the load simple • Write out instructions • Parental support • Clinical presence • (Next pages)
Motivation • Most children referred by an adult (parent, physician) • Motivation may not be inherent • Child may only be dimly aware of the problem, although it is troublesome to him/her • http://www.ineedmotivation.com/blog/wp-content/uploads/2008/07/pp30580motivation-posters.jpg
Motivation • Important to “set the stage” for the child • Need child “buy-in” • Speak directly to the child (even if parent is involved) • AIV (check) http://jimvining.files.wordpress.com/2009/05/empty-stage.jpg • AIV (check) • AIV (check)
Motivation • Maintenance of “buy-in” may be enhanced by extrinsic rewards for doing the tasks • Caution about extrinsic rewards for how the task is done (potential extinction; Skinner; see motor learning lecture) • AIV (check) http://unusuario.com/wp-content/uploads/2009/12/free-vector-graphics-stickers1.jpg • AIV (check)
Motivation • Specific moderately-difficult goals may be better than “do your best” • e.g. Kyllo & Landers, 1995 http://img.dailymail.co.uk/i/pix/2008/04_04/GarciaGhostGoal_468x358.jpg • AIV (check)
Remembering • Key for compliance is remembering an instruction in the first place http://www.durgana.com/webquest/remember.gif
Remembering • Conscious remembering is facilitated by so-called associational or elaborative processing (information presented in broader context) • E.g. Craik & Lockhart, 1972 • AIV (check) • Creation of stories about voice and voice care should help make therapy instructions memorable to the child http://mypetjawa.mu.nu/archives/toy_story_ver1.jpg
Instilling confidence • Self-efficacy also applicable to compliance in children • (e.g. Heitzler et al., 2010) • AIV (check) • Deal/talk directly with child • Give child opportunity for success • Make exercises “do-able” http://ag.udel.edu/extension/fam/gb/36month/reading.jpg
Adapting information level • Obvious • AIV (check) • Single program • But adapt tone, language, and some specifics according to age http://www.communicationsintheworkplace.com/Adapt_Win_Workplace_Communications.gif
Cosmetics • Child literature • Negative cosmetic side effects of cyclosporine (hirsutism, gum hyperplasia) with renal transplantation may affect compliance with treatment (Willetts & Trompeter, 2004) • Lack of confidence with headgear in orthodontic treatment affected compliance (Sergl et al., 2000) • AIV (check) • Pay attention to child’s comments and concerns about “sounding different”
Keep the load simple • Child literature • Complexity: Single doses of antibiotics have better compliance with children than multiple doses • Duration: Two-hr eye patch use gets higher compliance than 6-hr eye patch use • Arguedas et al., 2004; Gottlob et al., 2004 • AIV (check) • Keep the home program short, sweet (and fun!) http://corditecountryshownotes.files.wordpress.com/2009/10/gold-pills.jpg
Write out instructions • Definitely. • Audio CDs too! • AIV(check) http://www.mamismachicago.com/blog/assets/content//perscription.jpg
Parental support • Child literature • Critical mothers had more difficulty getting child (6-13 yr) to comply with asthma treatments, as compared to less critical moms • Critical parents had adolescents with greater improvement in asthma severity, greater reduction in steroid dose, shorter hospital stays; however those adolescents had poorer compliance with meds • Schobinger et al., 1993; Wamboldt et al., 1995 http://img.thesun.co.uk/multimedia/archive/00854/ControllingParents-_854169a.jpg
Parental support • AIV (check) • Encourage parental support rather than criticism or nagging http://www.lssi.org/Service/Images/BHSCounselingParentSupport.jpg
Parental support • Child literature • Parents and behavioral home programs • Home activity programs (HAP) for kids with global developmental delay (N=41; OT, PT, SLP) http://myportfolio.usc.edu/ecamin/pediatric_occupational_therapy.jpg • Compliance increased with • Support by therapist • Fewer secondary health problems • Smaller family • Older child receiving program (4.3 vs 3.8 yr) • Marital stability (longer marriage) • Father with university degree • Positive feelings about the program • Tetreault et al., 2003
Parental support • HAPs, cont’d • Many parents with high stress maintained the program • Important: When prescribing HAPs, be aware of demands placed on (Moms) http://www.couchavenue.com/wp-content/uploads/2008/04/exhausted.jpg
Parental support • HAPs, cont’d: Implications? • Important suggestions to help compliance • 1. Check to see if other HAPs are already in place; do not overburden family • 2. Ask parents if they agree to HAP • 3. Choose goals/activities with parents, for easier use in daily life • 4. No more than two goals per therapist, 6 goals total • 5. Take time to teach parents how to use the HAP • 6. Schedule follow-ups (e.g. phone calls) • 7. Revise HAP every 3-6 months http://www.atlanticstreet.org/images/momdtr2.gif
Frank behavior problems(no extra charge) • Autism • Noncontingent positive reinforcement decreased self-injury behavior • I.e. escape from learning activities on fixed time schedule • Vollmer et al., 1995 http://www.topnews.in/health/files/autism2.jpg
Frank behavior problems • Autism and possibly some other conditions, implications? • Consider noncontingent reinforcement? • AIV (check) • The whole therapy is a game • “Escape” not particularly needed http://www.filetransit.com/images/screen/6a96d4695b18e7d7b570b02ff4aadcab_Memonix.jpg
Clinician presence • Importance of rapport, patient-clinician relationship, emphasized • E.g. Johnson et el., 1998 (orthodontia) • AIV (check) http://www.sacredheartenergyhealing.com/Warm_Light.jpg