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Perspective from the Epicenter: Serious illness & end-of-life care Amy Berman, BS, RN. Objectives. Define patient-centered care Identify three things you can do to ensure patient-centered care. Define the difference between palliative care and hospice.
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Perspective from the Epicenter: Serious illness & end-of-life care Amy Berman, BS, RN
Objectives • Define patient-centered care • Identify three things you can do to ensure patient-centered care. • Define the difference between palliative care and hospice
Hartford Foundation Mission Increase the nation’s capacity to provide effective and affordable care to its rapidly increasing older population
Changing Demographics % % %
Patient-Centered Care “Care that is truly patient-centered considers patients’ cultural traditions, their personal preferences and values, their family situations, and their lifestyles. It makes the patient and their loved ones an integral part of the care team who collaborate with health care professionals in making clinical decisions.” -- Institute for Healthcare Improvement
How can care be Patient-Centered when we don’t discuss serious illness with the patient?
Three Things You Can Do • Ask about your care options • Make your values and goals understood • Complete advance directives and make sure your healthcare providers and family have them to ensure your choices are honored
Basic Advance Directives • Do Not Resuscitate Order (DNR) • Health Care Proxy • Living Will
POLST • Physician Orders for Life Sustaining Treatment (POLST) • Medical order that indicates the treatment you want in the last stages of illness www.coalitionccc.org
Palliative Care Palliative care focuses on improving the quality of life of people facing serious illness. Emphasis is placed on pain and symptom management, communication and coordinated care. Palliative care is appropriate from the time of diagnosis and can be provided along with curative treatment. www.getpalliativecare.org
Hospice • Provides comfort & support to patients and their families when a life-limiting illness no longer responds to cure-oriented treatments. • Neither prolongs life nor hastens death • Improves quality of a patient's last days by offering comfort and dignity. www.hospicefoundation.org
Special Thanks • American Federation of Teachers Healthcare Division