1 / 4

ethics– innocence&experience

Explore the ethical dilemmas faced in the FluPhone project during the H1N1 epidemic, where location tracking was ruled out due to ethical concerns. Discuss the inadequacy of medical ethics in data sharing and the challenges of ethics in a global sharing ecosystem. Consider the role of storytelling and privacy-preserving profiles in addressing these challenges.

rreilly
Download Presentation

ethics– innocence&experience

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. ethics– innocence&experience Jon Crowcroft http://www.cl.cam.ac.uk/~jac22 http://www.turing.ac.uk

  2. FluPhone • During H1N1 Epidemic • With HPA • Track encounters between smart phones • Securely log locn/time/id to dbase • Dbase access control ltd only 2 people • Med Ethics cttee • Ruled out location logging • Ruled out children from users • Nb argument here was “informed consent” pb.

  3. Problems with med ethics decision • Invalidates epidemic model • Kids are main mix zones for flu • Location (e.g. schools) was a key question for quarantine decision • Subsequently, in Ebola outbreak • Just did include all that…. • Obviously risk (mortality) was way higher.. • No, Actually, • we did not know that at outbreak of H1N1

  4. 4 questions • - Can we successfully negotiate ethics innovation? • pace • - Where are medical ethics inadequate when it comes to data sharing? • pace • - How can ethical frameworks go wrong in data sharing ecosystems? • pace • - What are the challenges of ethics in a _global_ sharing ecosystem • Pace • Story telling/narratives/morality tales – SciFi is a useful tool • Privacy preserving profiles • Fair ML/Classifier algorithms • https://arxiv.org/abs/1507.05259v4

More Related