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This research topic explores the experiences of individuals with acquired Spinal Cord Injury (SCI) in Victoria, Australia, focusing on the receipt or non-receipt of compensation. It examines the various support services utilized by individuals with SCI and the factors that influence support utilization. The concept of support is explored in contrast to care, drawing on existing knowledge to establish a conceptual framework for enhancing support.
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Disability Studies Conference 2010Lancaster University Raelene WestCHS - Melbourne School of Population HealthUniversity of Melbourne What do we mean by support for people with impairment?
Research Topic: To explore the experiences of people with impairment, specifically people that have acquired a Spinal Cord Injury (SCI) in the state of Victoria Australia, with particular reference to experiences of receipt or non-receipt of compensation
Diverse array of findings: • that individuals with a SCI in particular drew on a number of services in their day-to-day life just to maintain wellbeing, quality of life and social inclusiveness • that support utilised was influenced by elements such as individual agency, the defined parameters of support programs that were available, individual knowledge and amounts of informal care available
Concept of support: • What do we mean by support, in terms of people with SCI? • Does support contrast with care? • What do we already know about a concept of support?
A construct of support: More opportunity for a two-way, reciprocal work and informal relationships Inclusive of variety of different support people received such as financial support, support from Human Rights instruments and support from an accessible built environment
Conceptualisation of a platform of support? • Identification of essential element/s of support • Impact if particular elements of support are removed • Establishment of a structure to enhance Nussbaum’s (2001) Capabilities Approach