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International Perspective on Dementia Friendly Communities

International Perspective on Dementia Friendly Communities. Dr. Jacob Roy Kuriakose Chairman, ADI. Why are dementia friendly societies important?. Increasing numbers Negative cultural attitude Discrimination leading to social isolation Stigma Barriers in the physical environment

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International Perspective on Dementia Friendly Communities

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  1. International Perspective on Dementia Friendly Communities Dr. Jacob Roy Kuriakose Chairman, ADI

  2. Why are dementia friendly societies important? Increasing numbers Negative cultural attitude Discrimination leading to social isolation Stigma Barriers in the physical environment Poor designs

  3. Examples from various countries!!! • Dementia trends scheme (UK) 1million people to be trained in dementia care • National wide caravan • Champions to train one million supporters in next five years (Japan) • Dementia with out walls (England) • Together for a dementia friendly brings (Belgium) • Dementia friendly communities (Scotland) • Dementia friendly hospitals (UK)

  4. About Alzheimer’s Disease International (ADI) • Established 1984 • The umbrella organisation of Alzheimer associations around the world • 79 member associations Aims to help establish and strengthen Alzheimer associations throughout the world, and to raise global awareness about Alzheimer's disease and all other causes of dementia

  5. Dementia Worldwide

  6. Dementia Worldwide US$604 billion in 2010 • Includes direct medical costs, direct non-medical costs and costs of informal (family) care

  7. World Alzheimer’s Month September is World Alzheimer’s Month 21 September is World Alzheimer’s Day • 2012 first World Alzheimer’s Month • 2012 Dementia: living together • 70 countries participated • 2013: A Journey of Caring • World Alzheimer Report on continuum of care • Facebook campaign www.alz.co.uk/world-alzheimers-month

  8. World Health Organization In Official Relations with WHO since 1996 • Advocating for dementia to be a global health priority • Statements given by ADI representatives at regional meetings of the WHO • Present at World Health Assembly each year • Collaborated with WHO on dementia report

  9. WHO report on dementia Dementia: a public health priority • Launched on 11 April 2012 • International collaboration between ADI and WHO • A new case of dementia every 4 seconds • Inclusion of ADI’s figures from World Alzheimer Reports • Call for WHO member nations to act now www.alz.co.uk/WHO-dementia-report

  10. Advocacy • Advocacy as part of the NCD Alliance (non-communicable diseases) • Joint statement on NCDs with 10 other ageing and care organisations • Consultative status with United Nations since August 2012 • Tracking national dementia plans www.alz.co.uk/alzheimer-plans

  11. Towards dementia friendly initiative • UK undoubtedly the major player in developing and implementing the concept. • US, Ireland, Australia, Japan, Belgium • Reports of quality work have already emerged the concept is catching up internationally but in different shapes and forms.

  12. Key messages relevant internationally • There should be an integrated approach relevant to local circumstancesto enable people with dementia live successfully in the society •  Social inclusiveness is the heart of the concept • Any measure should be aimed at improving the quality of life

  13. In international context, transferable criteria include • There should be a conducive social and physical environment • Strong network of carers and supporters is essential • People with dementia and their carers should be the key decision makers • The whole community should be dementia aware most communities already have several good dementia friendly aspects, they only need further adaptations • Better information packages and custom built training should be available • “Dementia friends”, the responsibilities should be culturally appropriate and locally relevant • Social welfare aspects of elderly with dementia is the most diverse aspect with many countries having no or minimal provisions.

  14. Organisations in the UK like Alz Soc. can take a lead role internationally  • In the development and implementation of DFC • Create a database • Provide a network • Evaluate the progress • Advise on guidelines for recognition of DFC • Identify key areas of DFC research

  15. The way forward UK has been leading the way • Create a more inclusive society Where a person with dementia can lead a life of honour and dignity

  16. Thank You

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