1 / 18

What do caregivers think about the Cognitive Performance Test as a tool for caregiver education?

What do caregivers think about the Cognitive Performance Test as a tool for caregiver education?. Terrianne Jones, MA, OTR/L MOTA Annual Conference Oct. 26, 2012. Background Information. Incidence of Alzheimer's and Mild Cognitive Impairment is rising .

seanna
Download Presentation

What do caregivers think about the Cognitive Performance Test as a tool for caregiver education?

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. What do caregivers think about the Cognitive Performance Test as a tool for caregiver education? Terrianne Jones, MA, OTR/L MOTA Annual Conference Oct. 26, 2012

  2. Background Information • Incidence of Alzheimer's and Mild Cognitive Impairment is rising . • Most persons remain in the community with the support of ‘informal care’. • The value of unpaid ‘informal care’ was estimated to be $202 billion dollars in 2010. Source: Alzheimer’s Association, 2011.

  3. Issues • Delayed diagnosis (Bradford, Kunik, Schulz, Williams & Singh (2009) • Refusal to seek treatment (Boustani et al (2006) • Stress (Diemling &Bass, 1986; Pinquart & Sorenson, 2003; Schulz & Martire, 2004) • Belief that no help should be needed (Brodaty, Thomson, Thompson & Fine, 2005) • Lack of awareness of services (Brodaty, Thomson, Thompson & Fine, 2005) • Restricted health care options and limited financial resources (Boustani et al,2006)

  4. Role of OT • Over 1/3 of OTs work with persons aged 65 + (AOTA, 2010) • Mostly in home care, community settings and skilled nursing facilities (AOTA, 2010) • Assess: performance vs. potential (Bonder, 2009) • Make predictions (Burns, 2006) • Educate clients and their caregivers

  5. AOTA Practice Guidelines for Adults with Alzheimer’s Disease and Related Disorders(Schaber, 2010) • Services offered should revolve around assessment of : • cognitive abilities • daily habits and routines • the environment • Caregivers can be trained to use strategies to help both themselves and their loved ones function more effectively. • A family centered care model is recommended.

  6. Literature Review Caregivers want: • Specific and individualized information to support their relationships, to include communication issues and facilitating engagement in day to day activities (Turner & Street, 1999; Yedidia & Tiedemann, 2008; Tottie, 2010). • Strategies to manage memory loss and difficult behaviors, as well as how to manage risk (Turner & Street, 1999; Yedidia & Tiedemann, 2008; Tottie, 2010).

  7. More: Nichols et al, 2009: • Management of confusion and participation in activities such as driving Rosa et al, 2010: • 83% of the participants reported a need to develop more effective caregiver to patient communication. • How to use non pharmacological approaches

  8. More: Qazi, Spector & Orrell, 2010: • Found that caregivers want person centered care and education about engagement in meaningful activity as tools to help persons with dementia feel less anxious.

  9. Barriers cited by caregivers: Lach & Chang, 2007: • Not knowing what to do and when • Lack of access to help • Dissatisfaction with health professionals who were not helpful Tomita et al (2010): • the second most helpful support behind friends and family were health care professionals. • the second most unhelpful support, again behind family and friends, were health professionals.

  10. More barriers… Yedidia and Tiedmann, 2008: • Communication with professionals • Issues with communicating with the loved one and managing their behaviors. Neufeld and Kushner, 2009: • Men especially feel ill prepared to be caregivers

  11. In Summary: • Caregivers want not only information about the diagnosis from a clinical perspective, but also want practical solutions and strategies that they can use daily to support not only their loved one, but their own heath and wellbeing as well. • They do not want written materials to be the primary source of their information (Parker, Mills & Abby, 2008).

  12. Caregiver Education: Best practice is a multi-component approach: • Gitlin, Winter, Dennis, Hodgson, Huack (2010):Care of Persons with Dementia in their Environments (COPE) • Graf et al, 2007:Effects of community occupational therapy on quality of life, mood, and health status in dementia patients and their caregivers: A randomized controlled trial

  13. St. Therese Study • CPT is tool of choice for assessing cognition • Questions about the efficacy of caregiver education based on the CPT • Participatory Action Research • Role of caregivers as co-researchers

  14. Preliminary data from caregiver interviews:

  15. Notes:

  16. Notes:

  17. Notes:

  18. Conclusions thus far:

More Related