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Engaging Stakeholders in Adolescent Depression Research

Join the conversation on involving teens, parents, and professionals in adolescent depression research. Learn about steps in research and how stakeholders can contribute. Help us develop online stakeholder groups to provide feedback on research steps and more.

selma-gibson
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Engaging Stakeholders in Adolescent Depression Research

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Presentation Transcript

  1. YRAB Meeting 7.10.14

  2. Thanks for your help! Ana: Adolescent Medicine Physician and Researcher Interested in how to help teens who need help with depression get the care that they need Would help to have advice about using the internet to get teens and parents to participate in research

  3. Goal: Involve Stakeholders • What is a stakeholder? • A person or an organization who has an interest in the results of research • Representing the needs and interests of stakeholders is important through all steps of the research process

  4. What are steps in research? • 1) Think of a research question. • 2) Design a way to answer the research question. • 3) Conduct the research study. • 4) Write about the research study.

  5. What are steps in research? • 1) Think of a research question: • Do teens want their parents in the room during a clinic visit? What are reasons for or against it? • 2) Design a way to answer the research question. • Come up with a survey. • 3) Conduct the research study. • Ask people to do the survey and collect it. • 4) Write about the research study. • Analyze your results and write a paper.

  6. How can stakeholders help with research questions? • 1) Think of a research question: • Do teens want their parents in the room during a clinic visit? What are reasons for or against it? • Is this an important question? If we answer it, what can we do with the information? Is there a different question we should be asking? • 2) Design a way to answer the research question. • Come up with a survey. • Is this the best way to answer the question? How should the survey be worded so everyone understands it? What’s the best way to order the survey questions? How long should it be? What should be asked? • 3) Conduct the research study. • Ask people to do the survey and collect it. • What groups should we ask to do the survey? What’s the best way to ask them to do it? If we use recruitment fliers, what kind of design should we use? • 4) Write about the research study. • Analyze your results and write a paper. • Does the way we interpreted the results make sense? Where should we send the article to to get published? Who should we share the information with?

  7. Stakeholders in Adolescent Depression Teens who have depression Parents of teens with depression Doctors, nurses, therapists Schools Community groups Insurance Companies

  8. Do Depressed Teens want to come to an in person meeting? Maybe not… Depressed teens use the internet more often than teens who are not depressed They talk to strangers more often Some of their symptoms like – not being motivated to do things or not being interested in things they used to like may make it hard for them to bring themselves in

  9. Would teens talk about depression research online? Social Media Interviews: interviewed depressed teens and parents about how they use social media A lot of teens with depression use social media and try to connect with other teens who might need help and convince them to get treatment, give them positive advice Depressed teens seem to want to help other teens with the same problems they have

  10. My goal Develop an online stakeholder group for adolescent depression: 2 separate groups – one for teens and one for parents Purpose: to provide feedback on my research steps and potentially other adolescent depression research

  11. Questions What is the best place on the internet for people to provide feedback and interact with researchers? Do people want their information (fbk profile pic) to show up when they are providing feedback or would they rather be anonymous? Do they want the fact that they posted on this board to be visible to their social media contacts? Would people sign up to participate in clinic if I have them join the social media groups?

  12. First we’ll go through an example. Then I’ll ask for feedback on each step in this process.

  13. Example: Recruitment Lana goes to her visit with her therapist. Hanging up on the wall is a flier.

  14. Flier says: Your opinion matters! Help researchers figure out the best way to help teens with depression and other mental health problems. Sign up for “SOVA” Supporting Our Valued Adolescents groups and let us know your thoughts about important questions we should be asking to help people like you live healthy and happy lives. If you are a teen or a parent of a teen who has every been told by a doctor they may have symptoms of depression, sign up to provide research feedback today! Facebook Group: ___ QR code Follow us on Twitter @SOVA etc. or hashtag SOVA Follow us on Instagram Follow us on Tumblr

  15. Lana scans the QR code for the Facebook Group. SOVA – Teen Group Thanks for joining the SOVA group for teens! Check out our first post we’d love to have your feedback on! Miley

  16. Website Blog Lana clicks on the web link and gets transported to a forum where she can give her response to a question which is asked and/or like or move up answers which she agrees with.

  17. Example of Website http://www.youtube.com/watch?v=w6w3zyfi7-c

  18. SOVA: Check out this flier we would like to use for a study. What do you think about the pictures and wording? Sign up for this awesome study! Call 641.4141 9 5 Rebel: I think the background color is ugly and the picture looks like a car salesman! Try blue! Emma: I want to know more about what the study is about?

  19. Now for feedback! Now that you know the steps in the process let’s go step by step and hear what you think!

  20. Example: Recruitment Lana goes to her visit with her therapist. Hanging up on the wall is a flier.

  21. Flier says: Your opinion matters! Help researchers figure out the best way to help teens with depression and other mental health problems. Sign up for “SOVA” Supporting Our Valued Adolescents groups and let us know your thoughts about important questions we should be asking to help people like you live healthy and happy lives. If you are a teen or a parent of a teen who has every been told by a doctor they may have symptoms of depression, sign up to provide research feedback today! Facebook Group: ___ QR code Follow us on Twitter @SOVA etc. or hashtag SOVA Follow us on Instagram Follow us on Tumblr

  22. Lana scans the QR code for the Facebook Group. SOVA – Teen Group Thanks for joining the SOVA group for teens! Check out our first post we’d love to have your feedback on! Miley

  23. Website Blog Lana clicks on the web link and gets transported to a forum where she can give her response to a question which is asked and/or like or move up answers which she agrees with.

  24. Example of Website http://www.youtube.com/watch?v=w6w3zyfi7-c

  25. SOVA: Check out this flier we would like to use for a study. What do you think about the pictures and wording? Sign up for this awesome study! Call 641.4141 9 5 Rebel: I think the background color is ugly and the picture looks like a car salesman! Try blue! Emma: I want to know more about what the study is about?

  26. Thank you!

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