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The Lifespan of the psychosocial effects of Cystic Fibrosis

The Lifespan of the psychosocial effects of Cystic Fibrosis. By Sarah Kamper PSY 1100. " Woe to that child which kissed on the forehead tastes salty. He is bewitched and will soon die .“ - 1606, Alonfo y de los Ruyzes de Fontecha. CFTR protein transport defect: .

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The Lifespan of the psychosocial effects of Cystic Fibrosis

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  1. The Lifespan of the psychosocial effects of Cystic Fibrosis By Sarah Kamper PSY 1100

  2. "Woe to that child which kissed on the forehead tastes salty. He is bewitched and will soon die.“-1606, Alonfo y de los Ruyzes de Fontecha

  3. CFTR protein transport defect:

  4. Lack of Cl- and water transfer leads to…

  5. CF Treatment

  6. Psychosocial impacts on those with CF include…

  7. Embryo-Birth

  8. First 2 Years

  9. First 2 Years

  10. Early Childhood: 2-6 years old.

  11. Middle Childhood: 7-11 years old.

  12. Adolescents: 12-17 years old.

  13. Young Adult: 18-25 years old.

  14. Adults: 26-65 years old.

  15. Conclusion The psychosocial effects on those with CF vary. Experiences of anxiety, depression, and stress are evident throughout much their lifespan, but the degree of their distress is highly influenced by the severity of their health condition and family/friend support.

  16. References 1. Anderson, D., Flume, P., & Hardy, K. (2001). Psychological Functioning of Adults With Cystic Fibrosis. Chest, 119 (4), 1079-1084. 2. Basic Defect in Cystic Fibrosis Part 1 [Video file]. Retrieved from http://www.youtube.com/watch?v=jDzmgXsgmwM 3. Basic Defect in Cystic Fibrosis Part 2 [Video file]. Retrieved from http://www.youtube.com/watch?v=Ev3yKU93Vl0&feature=relmfu 4. Ernst, M., Johnson, M., & Stark, L. (2011). Developmental and psychosocial issues in CF. Pediatric Clinics of North America, 58 (4), 865-885. 5. Eva, 65 Red Roses-#31 [video file]. Retrieved from http://www.youtube.com/watch?v=0uwZf2Sm0KI 6. Julia’s Warriors 2010 [Video file]. Retrieved from http://www.youtube.com/watch?v=HQGObNzignA 7. George, M., Rand-Giovannetti, D., Eakin, M., Borrelli, B., Zettler, M., & Reikert, K. (2011). Perceptions of Barriers and Facilitators: Self-management Decisions by Older Adolescents and Adults with CF. Journal of Cystic Fibrosis, 9(6), 425-432. 8. Littlewood, James. (2004). Looking back over 40 years and what the future holds. 27thEuropean Cystic Fibrosis Conference 2004. Retrieved from http://www.cftrust.org.uk/aboutcf/whatiscf/cfhistory/Levy_Lecture_04_-_JL.pdf 9. Riekert, K., Bartlett, S., Boyle, M., Krishnan, J., & Rand, C. (2007). The Association Between Depression, Lung Functioning, and Health-Related Quality of Life Among Adults With Cystic Fibrosis. Chest, 132 (1), 231-236. 10. Segal, Terry Y. (2008). Adolescence: what the cystic fibrosis team need to know. Journal of the Royal Society of Medicine, 101 (S1), S15-S27. 11. Teicher, Joseph D. (1969). Psychological Aspects of Cystic Fibrosis in Children and Adolescents. California Medicine, 110 (5), 371-374. 12. Webb, A., Jones, A., & Dodd, M. (2001). Transition from paediatric to adult care: problems that arise in the adult cystic fibrosis clinic. Journal of The Royal Society of Medicine,94 (S40), S8-S11.

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