Destination: Person Directed Care in Iowa

1. Destination: Person Directed Care in Iowa Presented by the Iowa Person Directed Care Coalition “Empowering Iowans to direct their lives and care wherever they live”

2. Objectives • Identify the background and mission of the IPDCC • Define differences between staff-directed culture and a person-directed culture • Discuss the differences in philosophies and care practices based on the approach

3. IPDCC Background • Purpose: IPDCC creates and promotes philosophies, practices and environments within the long term care continuum that renew and support the spirit for living through opportunities for relationships, compassion, hospitality and empowered choices. • Vision: Persons served in Iowa are directing their lives and care wherever they live because barriers to person directed care have been eliminated.

4. Holistic Approach to Transformational Change (HATCh)

5. IPDCC: Moving Iowa Toward Person Directed Care Individual’s input is sought and some preferences are applied. Environment in common areas is more inviting. Schedules and routines are dictated by the facility. Surroundings are drab and uninviting. Individual determines own schedules, activities meals and caregivers. Individual is offered more choices, often including when to wake, eat and bathe. Surroundings are more like home.

6. Waking to Change

7. The Journey • Waking • Eating/dining • Bathing • Night time cares/assistance • Consistent assignments

8. Traditional Culture No knowledge or implementing of preferences Time up determined by staff convenience – some up at 5:00am to “help” day shift All staff come on at same time Everyone up for breakfast Care is routine, rushed Transformed Culture Staff know residents’ preferences Residents wake up on own schedule Staff “shifts” adjusted to residents’ needs Breakfast on demand Morning care is individualized and more relaxed Staff do own scheduling based on residents’ needs Waking

9. Traditional Culture No choice Served on trays Plastic dishware “Feeders” Staff talk around residents Large dining rooms Lots of special diets Lots of wasted food and weight loss Boring snacks and no access Transformed Culture Residents’ have choice of what and when (menu, buffet, family style) China dishes Staff interact with residents Smaller dining/cooking areas in the household Liberalized diets Less food waste, more weight gain Interesting snacks and 24 hour access Eating/ Dining

12. Traditional Culture A task to be done on a body Routine set up for convenience of staff Twice a week whether you like it, need it, want it No choice of type or time Staff feel forced Resident feels forced Damages relationship Causes injury to resident and staff Transformed Culture A pleasant or tolerable experience in context of a relationship Choice and input about how, how often and when is it done Preserves and enhances relationships Redefine what “bathing” means Creates “blissed out” experience Bathing

15. Traditional Culture People are to sleep through the night Staff make rounds and turn and change every 2 hours Staff turn on lights, talk Complete flip side to side Plastic mattress and pillow Thin gown and blankets All incontinence and skin care the same Medicate with sleep medication Transformed Culture If people are not sleepy, they may want and need to get up If they awaken frequently, need to assess if there is unmet need Reposition only as much as necessary Enter quietly with low light Individualize the bed and sleep environment for comfort Incontinence and skin care is individualized Don’t awaken them for care unless there is a compelling health reason to do so More likely to medicate for pain than for sleep Night Time Care/Assistance

16. Traditional Culture Nurses make assignments without input from residents or staff Staff rotate from unit to unit Staff stay on same unit but still rotate every 1-2 weeks Staff rotate from assignment to assignment every month Set shifts Set jobs. Transformed Culture Staff and eventually the residents choose with whom they will work, based on existing relationships Staff works with same group of residents at all times and coordinate with fill-in people Changes are made only at resident, staff or perhaps family’s request All shifts have consistent assignments Dietary, housekeeping consistently assigned Crossed trained staff can meet resident’s needs and wishes Consistent Assignments

17. Web Sites • Iowa Person Directed Care Coalition • www.iowapersondirectedcare.org • Pioneer Network • www.pioneernetwork.net • MedQIC • www.medqic.org • Culture Change Now • www.culturechangenow.com • Almost Home • www.almosthomedoc.org • Eden Alternative • www.edenalt.org • Action Pact, Inc. • www.actionpact.com

18. IPDCC Steering Committee • ACBM Corporation • Briggs Corporation • Continuum Health Care Services • Des Moines Area Community College • IFMC  • Iowa Association of Homes & Services for the Aging • Iowa CareGivers Association • Iowa Department of Inspections & Appeals • Iowa Health Care Association • Iowa Veterans Home • Office of the State Long-Term Care Ombudsman

19. Questions? This material was prepared by the Iowa Foundation for Medical Care, the Medicare Quality Improvement Organization for Iowa, under contract with the Centers for Medicare & Medicaid Services (CMS), an agency of the U.S. Department of Health and Human Services. The contents presented do not necessarily reflect CMS policy. 8SoW-IA-PPT-NH-11/09025b