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Sarah Buckland, Director, INVOLVE sbuckland@invo.uk 02380 651088

People Centred Public Health Research. Sarah Buckland, Director, INVOLVE sbuckland@invo.org.uk 02380 651088 . www.invo.org.uk. What is INVOLVE? . How we do it: INVOLVE Strategy 2012 – 15 Annual work plans INVOLVE Members INVOLVE Coordinating Centre.

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Sarah Buckland, Director, INVOLVE sbuckland@invo.uk 02380 651088

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  1. People Centred Public Health Research Sarah Buckland, Director, INVOLVE sbuckland@invo.org.uk 02380 651088 • www.invo.org.uk

  2. What is INVOLVE? • How we do it: • INVOLVE Strategy 2012 – 15 • Annual work plans • INVOLVE Members • INVOLVE Coordinating Centre A national advisory group funded by the National Institute for Health Research (NIHR). Established 1996. Supporting active public involvement in NHS, public health and social care research

  3. INVOLVE members • 33 members • service users • carers • members of the public • researchers • public involvement specialists • research managers • health and social care practitioners • people from voluntary sector • organisations

  4. What do we mean by involvement and engagement? • Public Involvement • Where members of the public are actively involved in research and in research organisations. e.g. • involvement in identifying research priorities • commenting on research plans and the acceptability of research to the public • membership of steering committees • undertaking research • Public Engagement • Where information and knowledge about research is provided and disseminated to the public. e.g. • science festivals open to the public with debates and discussions on research • open days where members of the public are invited to find out about research • using media to inform and raise awareness of research with the public • invo.org.uk

  5. Why is public involvement important? • Broad democratic principles of citizenship, accountability and transparency. • Public involvement in research can lead to empowerment for people who use health and social care services, providing a route to influencing change and improvement in issues which concern them most. • Public involvement can lead to better quality research that is - • more relevant • accessible and acceptable to participants and • lead to better practical outcomes

  6. Some of the challenges for public involvement in public health research • Public involvement and engagement • – emphasis on engagement / communicating research findings • - terms often used interchangeably • Language and definitions of ‘public’ • Not just health interventions – research often involves healthy people who may have less motivation to get actively involved in research

  7. Some examples of public involvement in public health research • Watcome Study – Randomised Controlled Trial of how housing conditions in Torbay affected the health and wellbeing of residents • Born in Bradford Study - birth cohort of 10,000 babies born in 2007, being followed up for 20 years • On the Buses study – public health impact of free public transport for young people in London. • www.lshtm.ac.uk/php/hsrp/buses/youth/index.html

  8. How best to involve the public? • Involve people as early as possible • Be clear with the people you want to involve • Be accessible • Resource the involvement • Offer training and support • Clarify organisational responsibilities • Document and record involvement in your research

  9. INVOLVE Strategy • Influenceresearch POLICY and PRACTICE • LEAD across the National Institute for Health Research • Develop CAPACITY and CAPABILITY • Build and share the EVIDENCE BASE

  10. Leading on public involvement across the NIHR and influencing research policy and practice Influencing policy and practice e.g. • Supporting NIHR e.g. • Public involvement in research funding decisions • Public involvement in research funded by the NIHR Research • Plain English summaries • NIHR wide approach to Learning and Development • Principles and standards for involvement • Regulation of research e.g. Health Research Authority (HRA) • Payment • e.g. Payment guidance • International e.g. Denmark and • Netherlands

  11. Building and sharing the EVIDENCE BASE – e.g. invoNET http://www.invo.org.uk/invonet/ A network of 200+ people with a shared interest in researching nature, extent and impact of public involvement in research. Evidence Library http://www.invo.org.uk/resource-centre/evidence-library/ An on line database of 200+ lay summaries of reports on the nature, extent, impact of public involvement. Examples of public involvement User controlled research, social care research, impact on the quality of research, examples of involvement in research design.

  12. Developing CAPACITY and CAPABILITY – e.g. • Sharing knowledge and experience: • Responding to enquiries • Newsletter and email alerts • Resources: • Briefing Notes for Researchers • Public Information Pack (PIP) • Training and support for public involvement • Involvement cost calculator • Databases and maps: • Putting it into practice database • People in Research database • invoDirect

  13. People Centred Public Health Research Sarah Buckland, Director sbuckland@invo.org.uk 02380 651088 • www.invo.org.uk

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