250 likes | 280 Views
Living Well with Dementia. Ruth Mantle Alzheimer Scotland Dementia Nurse Consultant Christine Steel National Dementia AHP Consultant. My name is not dementia (2010).
E N D
Living Well with Dementia Ruth Mantle Alzheimer Scotland Dementia Nurse Consultant Christine Steel National Dementia AHP Consultant
My name is not dementia (2010) “People with dementia often feel that dementia becomes the only thing others know about them. But they remain individuals in their own right and dementia is not the most important thing about them. Many are still able to do what they did before despite their life changing and some things becoming increasingly difficult to do.”
Quality? Says who? “Quality of life is defined primarily by the person, as a person, and their circumstances, not their dementia”
“When the day comes that I have to start asking for help...[and]...if that independence is taken away...then I hope its only taken away from me in the right way...I would like to think that I could still be consulted and still have some say in my independence”
“Going to the church, I sing, makes me happy. I miss my church, now I can’t sing, can’t go to church.”
“Don’t get me wrong, carers are the most important people in the world but you can have carers and keepers. The latter try and assume total responsibility for your life prematurely” (Peter Ashley, Person with dementia)
Appreciative Inquiry “ ..is based on a deceptively simple premise: organisations grow in the direction of what they repeatedly ask questions about & focus their attention on. It does not focus on changing people. Instead, it invites people to engage in building the kinds of organisations they want to live in” Gervase Bushe
Principles of Positive Risk-Taking Adapted from JRF, 2014