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HIMA 4160 Concepts in Health Information Technologies. Data and Data Standards Fall 2009. Data Data, Information and Knowledge Source of health care data Properties of health data Healthcare Standards Concepts Important Health care standards The desiderata of controlled terminology.
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HIMA 4160Concepts in Health Information Technologies Data and Data Standards Fall 2009
Data • Data, Information and Knowledge • Source of health care data • Properties of health data • Healthcare Standards • Concepts • Important Health care standards • The desiderata of controlled terminology Outlines
The patient in question • The parameter being observed or measured • The value of the parameter in question • The time of observation Elements of Data
Narrative • Abbreviation • Phrases • Numeric • Continuous signal • Multimedia • ... Type of Data
Clinicians • physicians • nurses • pharmacists • allied health • Office and administration staff. • Medical devices Who collects the data?
Create the basis for the historical record • Support communication among providers • Anticipate future health problems • Record standard preventive measures • Identify deviations from expected trends • Provide a legal record • Support clinical research Use of Medical Data
Conventional clinical data are semi-structured. • Medicine vs. Computer • Computer needs more structured data. • Coding, terminology, vocabulary systems Structure of Medical Data
Data Information Knowledge Data, Information and Knowledge
What is standard? • Why do we need standard in health care? • What are some of the major types of standard in health care? • What are some of the standards and standard development organizations? Data Standards
To facilitate communication. • To benchmark product or processes. • To increase efficiency. • To increase accessibility – ATM • To decrease cost Why do we need standard?
Languages • Transportation • Internet protocols • Operating systems What are some examples of the Standards?
Government mandates – HIPAA • Market oriented • De facto – Microsoft Windows, VCR, Blue-Ray? • De Jure • Ad hoc -- DICOM • Consensus – Many SDOs Categories of standard based on the development process
SDOs are organizations that develop and maintain the models, data dictionaries, structure, syntax, and implementation materials for electronic transaction standards between and within providers. All designated SDOs maintain policies that meet the requirements of the American National Standards Institute (ANSI), which accredits standards committees and provides an open forum for participants to identify, plan and agree on standards and assurance of due process. Standard Development Organizations
Consensus on a proposed standard • Broad based public review and comment on draft standards • Consideration of and response to comments submitted by voting members of the relevant consensus body and by public review commenter. • Incorporation of approved changes into a draft standard • Right to appeal by any participant that believe that due process principles were not sufficiently respected during the standards development in accordance with the ANSI-accredited procedures of the standards developer ANSI SDO Process
ISO ANSI ASTM HL7 ASC … … ISO, ANSI, and SDOs … …
Facilitate Information Sharing • Improve Efficiency • Avoid Waste and Redundancy • Improve Quality Why Do We Need Standards in Health Care
Classifications, Nomenclature, Vocabulary and Terminology • Data Interchange • Health Record Content and Structure Health Care Standards
Classifications, Nomenclature, Vocabulary and Terminology – Words and Semantics • Data Interchange – Conversation • Health Record Content and Structure – Composition Analogy -- Language
Classification: A clinical vocabulary, terminology, or nomenclature that lists words or phrases with tier meanings, provides for the proper use of clinical words as names or symbols, and facilitate mapping standardized terms to broader classifications for administrative, regulatory, oversight, and fiscal requirements. Classification -- Definition
A recognized system of terms used in a science or art that follows pre-established naming conventions; a disease nomenclature is a listing of the proper name for each disease entity with its specific code number. Nomenclature
A set of terms representing the system of concepts of a particular subject field; a clinical terminology provides the proper use of the clinical words as names or symbols Terminology -- Definition
list or collection of clinical words or phrases and their meanings. Vocabulary – Definition
ICD • ICF • CPT • DRG Classification Systems
SNOMED • LOINC • RxNorm Terminology
SNOMED-CT • Clinical terminology/nomenclature • College of American Pathologies + National Health Service (NHS). Systematic Nomenclature of Medicine – Clinical Term
Concepts (344,000) • Findings (swelling of arm) • Diseases (pneumonia) • Procedures (biopsy) • Observable entities (tumor stage) • Body structure (structure of thyroid) • Organism (DNA virus) • Substance (Gastric acid) • Pharmaceutical/biologic product (tamoxifen) SNOMED -- CT
Specimen (urine specimen) • Physical object (suture needle) • Physical force (friction) • Events (flash flood) • Environments/geographical location (intensive care unit) • Social context (organ donor) • Context – dependent categories (no nausea) • Staging and Scales (Nottingham ten-point ADL index assessment scale) • Attribute (controlled temperature) • Qualifier value (bilateral) • Duplicate concept (inactive concept) SNOME – CT Concepts (cont.)
913,000 Description/Synonym -- to express the clinical concepts • ~1.3 million semantic relationship to enable reliability and consistency of data retrieval SNOMED -- CT
SNOMED CT Concepts are modelled using • Hierarchies • Each “child” must be a subtype of its “parent” • concept may have multiple parents • Defining relationships • Using attributes, concepts may be linked to each other • Only relationships that are necessarily true are included • Appendicitis : site = appendix OK • All appendicitis has location in the appendix. • SLE : manifestation = anemia O no • Only some people with SLE have anemia. SNOMED -- CT
SNOMED is concept based • Each concept represents a unit of meaning • Each concept has one or more human language terms that can be used to describe the concept • Every concept has inter-relationships with other concepts that provide logical computer readable definitions. These include hierarchical relationships and clinical attributes. The Principles behind SNOMED CT structure
SNOMED CT contains relationships that link concepts to form logical computer readable definitions. • Logical definitions allow data to be recorded in a flexible way, whilst retaining the ability to analyze it in a consistent fashion. Semantic Relationship
SNOMED CT is one of a suite of designated data standards for use in U.S. Federal Government systems for the electronic exchange of clinical health information. • The National Library of Medicine (NLM), on behalf of the U.S. Department of Health and Human Services, entered into an agreement with College of American Pathologists for a perpetual license for the core SNOMED CT (in Spanish and English) and ongoing updates. • The contract provides to NLM a perpetual license to distribute SNOMED within the NLM’s Unified Medical Language System UMLS Metathesaurus for no cost use within the U.S. by both U.S. government (federal, state, local, and territorial) and private organizations. • The contract also covers updates to SNOMED CT issued by the College of American Pathologists between June 30, 2003 and June 29, 2008. Use
Logical Observation Identifier Names and Codes • Facilitate lab results transmission • Developed and maintained by Regenstreif Institute at IU. • About 32,000 observation terms LOINC
<component>:<property>:<timing>:<system>:<scale>:<method> • 8331-1 Body temperature: TEMP: PT: MOUTH: QN LOINC codes are created systematically using a six axis model
Component • Ejection fraction, heart beats, cardiac output, circumference • Kind of property • Angle, area, length, mass, pressure, temperature • Timing • Point in time, study minimum, maximum in 8 hours • System • Head of fetus, tricuspid valve, ventilator setting • Scale • Quantitative, ordinal, nominal, narrative • Method • Stated, measured, estimated Six Primary Axes
Standardized nomenclature for the clinical drug • Maintained by the National Library of Medicine • The name of a clinical drug combines its ingredients, strengths, and form RxNorm
Acetaminophen 500 MG Oral Tablet for a generic drug name • Acetaminophen 500 MG Oral Tablet [Tylenol] for a branded drug name RxNorm
A project at NLM to integrate many nomenclature systems • Three basic components • UMLS Metathesaurus • SPECIALIST Lexicon • UMLS Semantic Network UMLS
System A System B Data Interchange Standards
OSI Model level 7 – application • Define • The data to be exchanged • The timing of the exchange • The communication of errors between application HL7 Messaging Standard