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A Perspective From Both Sides of the Fence

A Perspective From Both Sides of the Fence. Patient and Family Experience Summit Dr Kate Granger ST5 Doctor in Elderly Medicine & terminally ill cancer patient. About Me…. What I’m going to talk about. Experiences as a patient Communication Undergoing procedures

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A Perspective From Both Sides of the Fence

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  1. A Perspective From Both Sides of the Fence Patient and Family Experience Summit Dr Kate Granger ST5 Doctor in Elderly Medicine & terminally ill cancer patient

  2. About Me….

  3. What I’m going to talk about • Experiences as a patient • Communication • Undergoing procedures • Deciding to stop chemotherapy • The impact of illness on me as a doctor • Communication • Advocacy • Importance of Palliative Care

  4. My experience on the other side as a cancer patient

  5. To me being a patient is… • Embarrassing • Undignified • Frightening • Stressful • Time consuming • Isolating

  6. Simple as 1,2,3…

  7. Listen

  8. Imagine this scenario… • I am alone • I am in agony • A junior doctor I have never met before • Tells me I have metastatic cancer… • He then leaves me without telling the nurses what he has just said, does not ask if I would like him to get anyone for me and I never see him again

  9. Finding out my definitive diagnosis • My Consultant sees me with his junior team • He asks if I want anyone with me • An appropriate warning shot is fired • I am gently told that I have DSRCT • He holds my hand • When I break down emotionally and ask the juniors to leave it is fine • Lots of quiet time for the news to settle • My questions are answered at an appropriate level

  10. Procedure after procedure • Retrograde bilateral ureteric stent insertion • 3 x nephrostomies • 2 x omental biopsies • Hickman line insertion • Flexible cystoscopy and stent removal • Antegrade bilateral ureteric stent insertion • Hickman line removal • (and numerous venepunctures, cannulations, intimate examinations etc)

  11. Dignity!

  12. Deciding to stop • New Year’s Eve 2011 • In hospital with febrile neutropaenia and peritonitis • Burdens of treatment outweighing benefits • Perceived as ‘giving up’ by some • Relief from others • Consultant tried to talk me into continuing…

  13. Impact of terminal illness on me as a practising doctor

  14. Communication • Importance of the ‘Little Things’

  15. Breaking bad news • Right time, right person, right setting, right after-care

  16. Advocacy • I can advocate for myself effectively • Many of my patients cannot…

  17. Palliative Care • Arguably the most important time in healthcare terms for a patient • Palliative Care is everyone’s business

  18. Any questions?

  19. To summarise • Serious illness has had a major impact on me as a doctor • Communication, communication, communication • Patient-centred care is the Holy Grail • Patients are individual people first and foremost; they are not just disease entities • Time to care

  20. Shameless self-promotion… • www.theothersidestory.co.uk

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