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EPF Health Technology Assessment Seminar

EPF Health Technology Assessment Seminar. Workshop 2: “Politics of HTA at EU level and national level: How can patients’ groups best get involved?”. Moderator : Panos Kanavos. Rapporteur: Walter Atzori. Brussels, 18 May 2010. Lack of patient involvement in earlier HTA processes

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EPF Health Technology Assessment Seminar

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  1. EPF Health Technology Assessment Seminar Workshop 2: “Politics of HTA at EU level and national level: How can patients’ groups best get involved?” Moderator: Panos Kanavos Rapporteur: Walter Atzori Brussels, 18 May 2010

  2. Lack of patient involvement in earlier HTA processes Patient involvement has increasedconsiderably over the last twodecades, but there are stillconcerns over: • Quality of this contribution • Patients’ ability to offeradded value to HTA processes • The role of patients and patient organisations in HTA This requires: Need to develop patients’ expertise to enable the patients to put the case forward in a satisfactory and meaningfulway Traditionalapproach to patient involvement in HTA

  3. Relative lack of patient involvement in HTA decisions and patient’sability to influence the processresulting in lack of transparency and lowlevel of trust and acceptability . Recommendation • Clear transparent HTA proceduresincludingclearframework for patients’ input • Patient involvementfrom the verybeginning (patients are involvedwhenit’stoolate) • Patients’ havingaccess to information in a concise and timelyway • Resources: finding new funding sources • Investing in HealthLiteracy and training • Europeanwideplatforms to support patients orgaisations in participating in HTA • Patient’s organisation themselvesshouldbe able to improve the waytheyinteractwitheachother and withdecision-makers Issue 1

  4. Issue 2 Lack of mutualunderstandingbetween patients and key HTA experts is a major barrier to promoting patient-centred HTA processes Recommendation Takeconcretestepswith a view to bridging the knowledge and language gap between experts involved in HTA processes and patient representatives. A two-wayprocessinvolvingclearcommittmentfromboth the patients and decision-makers

  5. Issue 3 Where do we place our value judgement? Too much emphasis on cost-effectiveness in HTA but not on the effectiveness of the overall healthcare system Recommendation Movingawayfrommerecost-effectivenessconsiderations in HTA to include real patients’ needsthrough patients’ empowerment • Patientsshouldbeinvolved in HTA criteria and priority settings • Decision-makers must understand patients’ point of view to effectivelyintegrate patient-relatedconsiderations in HTA decisions

  6. Issue 4 When it comes to HTA which have been rejected patients’ do not have the effective possibility to appeal against rejection decisions Recommendation Appealshould not be a priviledge of certain bodies and actors, i.e. manufactures, but patients and patient oragnisationsshouldbeequallyentitled to appealagaints a rejection decision in particularwhen the technology has been consideredsafe and canbring about important benefits for the patients. This wouldensure: -enhancedtransparency and reliability of HTA decisions -more added value -patient-centred HTA decisions

  7. ConcludingRemarks Are patients equippedenough to play a more meaningfulrole in HTA? The question shouldbere-phrased and reversed.. Are decision-makersready to invole patients meaningfully and change theirapproach (and language) towards patient involvement in HTA processes?

  8. Thank You

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