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Creating Palliative Care Pathways through Hospital-Hospice Partnerships. J Donald Schumacher, PsyD President and CEO. Mission and Vision. Mission: Leading and mobilizing social change for improved care at the end of life
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Creating Palliative Care Pathways through Hospital-Hospice Partnerships J Donald Schumacher, PsyD President and CEO
Mission and Vision Mission: Leading and mobilizing social change for improved care at the end of life Vision: Creating a world where individuals and families facing serious illness, death, and grief will experience the best that humankind can offer
NHPCO Priorities • Clinical excellence, quality and research • Provider support and capacity building • Public policy and advocacy • Global partnerships • Consumer engagement
Hospice as Leader • Hospice providers are palliative care experts in communities • Hospice can influence the palliative care model offered in each community • Multidisciplinary or interdisciplinary? • Medical model or holistic model? • Disease/symptom focused or patient/family focused? • Collaboration enhances access, expertise and credibility
Palliative Care is Here to Stay • National Consensus Project • Proposed Hospice Conditions of Participation • National Quality Forum • Insurance benefits – Aetna as a leader, others following • Savvy consumers demanding better care and symptom management
Your Choices Are: • Lead – identify partners, offer expertise and begin planning • Follow – collaborate with existing/new programs, offer expertise, be part of the community delivery system for palliative care • Get out the way – let others provide palliative care in your community
National Consensus Project • Partnership of 5 national organizations: AAHPM, CAPC, HPNA, Last Acts Partnership, NHPCO • Developed a set of guidelines for palliative care • Provides guidance to providers who are interested in developing palliative care programs
Proposed Hospice Medicare Conditions of Participation • Defines palliative care: Palliative care means patient and family-centered care that optimizes quality of life by anticipating, preventing, and treating suffering. Palliative care throughout the continuum of illness involves addressing physical, intellectual, emotional, social, and spiritual needs and to facilitate patient autonomy, access to information, and choice. • Incorporates palliative care term in several sections of proposed rule
National Quality Forum • Project to develop a framework for palliative and hospice care • Will release Framework document in early 2006 • Will begin looking for outcome measures for hospice and palliative care during Phase 2 of the project • Will set the stage for outcome measurement for hospice by CMS
Hospice and Palliative Care in Rural and Frontier Areas • Partnership between NHPCO, CAPC and the National Rural Health Association • Case studies and resources for providers in rural and frontier areas to develop hospice and palliative care services • Excellent resource for collaboration between providers, innovative ideas, and sample policies and forms
NHPCO’s Commitment NHPCO is: • committed to developing resources for palliative care providers • partnering with a variety of national organizations – especially with CAPC - to develop palliative care resources • providing resources for hospices who wish to expand their services to include non-hospice palliative care
NHPCO Marketplace Technical Materials published by NHPCO: • Hospital-Hospice Partnerships in Palliative Care: Creating a Continuum of Service • Clinical Practice Guidelines for Quality Palliative Care • Providing Hospice and Palliative Care in Rural and Frontier Areas Numerous books and publications on palliative care
NHPCO Educational Programs • Management and Leadership Conference • developing palliative care business models • Clinical Team Conference • the science of palliative care • Manager Development Program • hospice-values based training • Audio web seminars
Materials for Consumers • Just beginning development through Caring Connections • What is palliative care? brochure • www.caringinfo.org
Make no little plans; they have no magic to stir one’s blood and probably themselves will not be realized. Make big plans; aim high in hope and work, remembering that a noble, logical diagram once recorded will not die. Daniel H. Burnham Architect