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To Share or Not to Share? IGR 16 th October 2013

To Share or Not to Share? IGR 16 th October 2013. Janet Davies, Director of Nursing & Service Delivery. Information. Focus on Patients Essential for Care. Rules and Guidance. Critical for Governance Can restrict good practice. Citizens Said.

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To Share or Not to Share? IGR 16 th October 2013

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  1. To Share or Not to Share? IGR 16th October 2013 Janet Davies, Director of Nursing & Service Delivery

  2. Information • Focus on Patients • Essential for Care

  3. Rules and Guidance • Critical for Governance • Can restrict good practice

  4. Citizens Said • Powerful stories reinforcing what the Future Forum heard • Strong support for • more sharing of information to support their care • anonymous data to be used “for the public good” • research but plea to be asked before information is used • Antipathy to their identifiable information being used for other purposes • No surprises and the complex area when carers are involved

  5. Organisations Said • Anxious about sharing • Concerns about organisations’ reputation • Causes: • The Caldicott principles especially number 4 • Large fines from ICO for data breaches • Greater awareness of data protection • More care pathways cross organisational boundaries • Increased caution among health & care professionals

  6. Nurses Said • Prevented from communicating with patients using technology of choice • Concerns about sharing information between health and social care causing problems where teams interface • Sharing with independent/third sector problematic • Families are treated differently in health and social care • Rules and Guidance are all different – and creating confusion • Training not fit for purpose for all • Rules go beyond Caldicott principles

  7. Challenge • To make recommendations that change the culture while staying within the law and maintaining focus on good IG practice

  8. The Final Report - Purpose • Enhance trust • Better balance the risks of failure to maintain confidentiality, and failure to share • Simplify information governance, and for it to be seen as more closely aligned to clinical governance, not as a technical issue

  9. 14 Chapters • 26 Recommendations • A new Principle

  10. The duty to share information can be as important as the duty to protect patient confidentiality

  11. THE GOVERNMENT RESPONSE • ISOG – take forward work • IIGOP – Oversee activity

  12. NEW RULES • HSCIC: Treating confidential information with respect • Rule 2: Members of the Care team should share confidential information when it is needed for the safe and effective care of an individual

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