It Starts with One: Self-care & Retention

1. It Starts with One: Self-care & Retention April 19, 2012 For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#

2. Welcome & IntroductionAgenda Welcome & Introductions, 5 mins in+care Campaign Overview, 5 mins Self-care and Retention, 15 mins Learning from Each Other, 15 mins Promoting Self-care through Partners in+care, 5 mins Conversation and Q&A opportunities throughout webinar

3. At the end of this webinar, you will know more about . . . What is self-care The role of self-care in retention Practical strategies for using self-care to support retention How to use Partners in+care to support self-care and retention Welcome & IntroductionLearning Topics

4. Welcome & IntroductionGround Rules for Webinar Participation Welcome This is a “public event.” If you have confidentiality concerns . . . Your names appear on-line in the list of webinar registrants--consider just listening to the audio or viewing the webinar at a later time after it is posted at incarecampaign.org All webinars are recorded--do not use identifying information when asking questions For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#

5. Welcome & IntroductionGround Rules for Webinar Participation Actively participate and write your questions into the chat area during the presentation; we will also pause for conversation during the webinar Do not put us on hold Mute your line if you are not speaking (press *6, to unmute your line press #6) Slides and other resources will be available on our website at incarecampaign.org For Audio: Dial-in#: 866.394.2346 Participant Code: 4182576142#

6. Welcome & IntroductionIntroduce Guests Deloris Dockrey Director of Community Organizing Hyacinth AIDS Foundation New Brunswick, NJ - ddockrey@hyacinth.org Michael Hager Manager, TA/Dissemination NQC, NY, NY – mth02@health.state.ny.us Bob Tracy NQC Peer Consultant St. Paul, MN – bobtracyconsulting@gmail.com Mike Maginn Executive Director, Friends of People with AIDS Peoria, IL – mjmaginn@mmci.org

7. In+care Campaign Overview Welcome The goal of the in+care Campaign is to bring patients back to care and keep others from falling out of care. For more information: www.incarecampaign.org

8. In+care Campaign Overview A Little More Information about in+careFive Parts

9. The Role of Self-care in RetentionWhat is retention? • Stay in care / Return to care • Retention –having a routine for seeing your doctor/health care provider on a regular schedule • Doing this persistently – year-after-year-after-year There is a relationship—a seemingly obvious relationship—between regular medical visits and improved health and reduced mortality. Research published in 2010 provides the first data to demonstrate the survival advantage of regular HIV care. [Giordano, 2010] For more information about retention, visit the in+care Campaign website: www.incarecampaign.org

10. The Role of Self-care in RetentionModel for Chronic Care YOU

11. The Role of Self-care in RetentionChallenges to Retention & Self-care • Personal. [e.g. disease knowledge, perceived illness, acceptance] • Structural [help remembering appointments, transportation] • Financial [insurance, public support – housing, food, etc.] For more information about self-care, visit the NQC website: http://nationalqualitycenter.org/index.cfm/5943

12. The Role of Self-care in RetentionEducation Promotes Retention Improve engagement & retention through self-care education: [personal] • Improve knowledge; dispel negative beliefs • High level of health literacy • Patient education combined with relationships Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.

13. The Role of Self-care in RetentionSupport Promotes Retention Improve engagement & retention: [structural & financial] • Reminder calls or texts • Transportation or other supports • Insurance that enables routine access to health care; know how to use care Visit www.incarecampaign.org – “Resources Tab” to learn about effective retention initiatives.

14. The Role of Self-care in RetentionConversation Any questions? What self-care strategies do you use to stay in care? What “supports” work best? Additional Questions? Contact us at incare@NationalQualityCenter.org

15. Learning from Each OtherStories of Experience • Self-care education • Resource barriers • Lack of experience with routine health care • Personal strategies

16. Learning from Each OtherSuccess Stories from the Field • Offer “Making Sure” MCM clients • “Making Sure” curriculum / Self-care and advocacy skills • Personal definition of quality • Introduction to clinical measures of quality • Learn about HIV • Seeking advice • Problem-solving and taking action; practicing • health-promoting behaviors • Communication skills • Finding and valuing support of others peer support / Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886 Order Copies: incare@NationalQualityCenter.org

17. Learning from Each OtherSuccess Stories from the Field Adapting “Making Sure” for Partners in+care • Improve routine visits with HIV care • provider and routine viral load measurement • Use curriculum to introduce “retention” • and clinical measures for “retention” to • help assess quality Download “Making Sure” at http://nationalqualitycenter.org/index.cfm/6176/13886 Order Copies: incare@NationalQualityCenter.org

18. Learning from Each OtherStories of Experience Central IL Friends of People Living with AIDS Promoting Self-Care & Retention through . . . • Health education and self-care skill development • Emotional support Activities include . . . • Train peer navigators for state of Illinois • 3-day training • Prepare for formal or informal system support [i.e. work employment or volunteer peer support] For more information: Contact Mike Maginn – mjmaginn@mmci.org

19. Learning from Each OtherStories of Experience The Wellness Community Promoting Self-Care & Retention by . . . • Addressing impact that depression, isolation or stress can have on delaying care or inconsistent use of care Activities include . . . • Variety of tools for reflection & expression • Advocacy skills [ID practical needs, advocacy plan, communication skills] • Therapist, navigator, peer-to- peer experiences & support For more information: Contact Deloris Dockrey – ddockrey@hyacinth.org

20. Learning from Each OtherStories of Experience What do we do to keep ourselves in care? • I want to strengthen my community. [Mike] • I just need to make sure I can get to the clinic without much hassle. [Bob] • I work on developing good communication and a good relationship with my provider and clinic staff. [Deloris] Visit www.incarecampaign.org – Resources Tab to learn about effective retention initiatives.

21. Learning from Each Other Conversation Any questions? What are some of the common characteristics? What’s your self-care plan to stay in care? Additional Questions? Contact us at incare@NationalQualityCenter.org

22. Partners in+careImproving Retention through Self-care • Visit Partners in+care web page • Sign-up to join the Partners in+care network • Encourage others to join the network Visit www.incarecampaign.org – Partners Tab

23. Partners in+careImproving Retention through Self-care • Submit your tips • Describe the strategy you use • Post on Partners in+care web page • Need to be signed up www.incarecampaign.org

24. Partners in+care Webinar Series • in+care – Homelessness and Retention – Apr 26[2 pm ET] • Partners in+care - Sharing the Benefits of Care: Reaching Out to Others – May 24[2 pm ET] • Partners in+care -Making Retention Easier: Creating Systems that Work– Jun 28[2 pm ET] • Partners in+care Webinar Archive at www.incarecampaign.org • - Retention: Partners Make It Happen – Mar 22 • - It Starts with One: Self-care and Retention – Apr 19

25. Partners in+care What We Will Accomplish • Share what we know so we all get better at: • Seeing our doctor and HIV care providers on a regular basis • Reaching out and supporting others so they see their doctors and HIV care providers on a regular basis – especially those who are new to HIV care or who have stopped regular visits • Making sure we all get the full benefit of care and treatment in order to improve our health

26. Sign up to be a Partner! Campaign Headquarters:National Quality Center (NQC)90 Church Street, 13th floor New York, NY 10007Phone 212-417-4730 incare@NationalQualityCenter.orgincareCampaign.org

27. Partners in+care Selected References Cheever, Laura. Engaging HIV-infected Patients in Care: Their Lives Depend on It, Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1500-1502. www.ceciliagrierson.org/puma/Retention%20in%20HIV%20Care%20%28Editorial%29.pdf Giordano TP, Gifford AL, White AC Jr, et al. Retention in Care: A Challenge to Survival with HIV infection. Clinical Infectious Disease, 2007; Vol.44, Issue 11, pp 1493-1499. HIV AIDS Bureau. Self-Management and the Chronic Care Model. HRSA CARE Action. January 2006. Rukeyser, Joseph. Making Sure You HIV Care is the Best It Can Be: A Consumer Quality of Care Training Workshop. National Quality Center. June 2002/Revised March 2010.