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“Let’s Get (it) This Party Started”

Michigan Title V CSHCN Strategic Planning Session. “Let’s Get (it) This Party Started”. Diana Denboba April 16, 2008 U.S. Department of Health and Human Services (DHHS) Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau

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“Let’s Get (it) This Party Started”

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  1. Michigan Title V CSHCN Strategic Planning Session “Let’s Get (it) This Party Started” Diana Denboba April 16, 2008 U.S. Department of Health and Human Services (DHHS) Health Resources and Services Administration (HRSA) Maternal and Child Health Bureau Division of Services for Children with Special Health Needs

  2. What Kind of Party Is this Anyway? Core Outcomes

  3. MCHB :Mission • The mission of (MCHB) is to provide national leadership, in partnership with key stakeholders, to improve the physical and mental health, safety and well-being of the maternal and child health (MCH) population which includes all of the nation’s women, infants, children, adolescents, and their families, including fathers and children with special health care needs.

  4. Mandates for the System • Amended Legislation for Title V of the Social Security Act (1989): • “Facilitate the development of community-based systems of services” • Healthy People 2010 Objective 16-23 • “Increase the proportion of States and territories that have service systems for children with special health care needs.” • The President’s New Freedom Initiative (2001) • Responsibility given to HRSA for developing and implementing a community-based service system for children and youth with special health care needs and their families.

  5. Who are the Children and Youth? • “Children with special health care needs are those who have or are at increased risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services of a type or amount beyond that required by children generally.”

  6. Creating Change • Building on a 20 year history • Development • Demonstration • Partial implementation • History • National Agenda for CSHCN • Legislative Changes in Title V • Healthy People 2000 and 2010 • President’s New Freedom Initiative (2001)

  7. What Is A Community System? Click image to begin Click here to continue Source:Champions For Progress National Center/EIRI

  8. Principles Underlying theSystem of Services • Family-Centered • Culturally-Competent • Coordinated • Comprehensive • Community Inclusion

  9. Monitoring Progress • National Survey of CYSHCN • Title V Block Grant Performance Measures/Forms (TVIS) • Discretionary Grant Performance Measures (DGIS)

  10. Family/Professional Partnerships & Cultural Competence Outcome • Families will partner in decision making at all levels. • Family-Centered Care assures the health and well-being of children and families through respectful family/professional partnerships. It honors the strengths, cultures, traditions and expertise that everyone brings to this relationship. Family-centered care is the standard of practice that results in high quality services. • Family/Professional Partnerships assures that all are working together collaboratively with a sense of shared ownership, responsibility, success, power and respect for each others’ collective knowledge and expertise.

  11. Family/Professional Partnerships & Cultural Competence Outcome .. come together in a system, agency or among professionals and enable that system, agency or those professionals to work effectively in cross-cultural situations. *valuing diversity *cultural self-assessment *adapting to diversity *managing the dynamics of difference *institutionalization of cultural knowledge (Modified from Cross, Bazron, Dennis and Isaacs, 1989, by NCCC/Source NCCC) Cultural Competence

  12. Cultural Competence: the 3 H Perspective Head- Understand that people think, believe, behave, perceive, understand, react/respond differently than I do. Heart- Sensitivity to the differences and similarities between and among people; especially those who are different from me. Hands- Tools, skills and knowledge to work effectively with those who are different from me

  13. Family/Professional Partnerships & Cultural Competence Outcome Why Important? • National Survey for CSHCN 05-06 • Only 57.4% of families with CSHCN report they participate in decision making and are satisfied with services they receive (42.6 not achieved) • 35% lacked one or more components of family-centered care • Poor, children with more complex needs, Hispanic, other non-Hispanic and Black

  14. The Medical Home Outcome • An approach to providing health care services in a high-quality, comprehensive, and cost-effective manner. • Provision of care through a primary care physician and staff through partnerships with families, CYSHCN, allied health care professionals pediatric sub-specialists, education and other community providers.

  15. The Medical Home Outcome Care that is: • Accessible • Family-centered • Comprehensive • Continuous • Coordinated • Compassionate • Culturally-effective *And for which the physician shares responsibility

  16. The Medical Home Outcome Why Important? • National Survey for CSHCN 05-06 • Only 47.1 (52.6%) of families report having all components of a Medical Home. • 31.8%did not get one or more aspects of care coordination. • Better Health Outcomes • Reductions in disparities in health between socially disadvantaged subpopulations and more socially advantaged populations. * • Increased wellness resulting from comprehensive care .* * Starfield B, Shi L. The Medical Home, Access to Care, and Insurance: A Review of Evidence. Pediatrics. 2004:113(suppl):1493-1498

  17. Early & Continuous Screening Outcome • Early and periodic/on-going developmental screening and monitoring for all children and youth in conjunction with the medical home. • Develop and monitor the efficacy of statewide newborn and infant hearing screening, evaluation and follow-up programs

  18. Early & Continuous Screening Outcome Why Important? • National Survey for CSHCN • Only 63.8% of CSHCN were screened early and continuously for special needs. • Only 48% of CSHCN below the poverty level were. • 40-50% of infants needing some follow-up are lost (UNHS) • Early identification and continuous screening is critical: • Provision of appropriate services and ongoing assessments • Reduce long term, secondary consequences • Support families

  19. Access to Adequate Public or Private Insurance to Pay for Needed Services Outcome • Expand Insurance for Uninsured CYSHCN • Assure Comprehensive Coverage for CYSHCN with Insurance • Strengthen the Financing System • Uninsured and underinsured • Improve identification of CYSHCN • Increase outreach & enrollment • Raise income eligibility levels, expand buy-in options • Improve affordability (e.g. premium subsidies) • Buy in options, especially for small business

  20. Access to Adequate Public or Private Insurance to Pay for Needed Services Outcome Why Important? • National Survey of CSHCN • Only 62.0% feel adequately insured for services they need. • 18.1% experience financial problems. • Impact on family • 1/2+ of families spend $250 or more out of pocket, 20% of families spent more than $1,000 Medicaid & SCHIP limit co-pays, don’t have data on unpaid bills.

  21. Integrated Community Systems Outcome • To support states and community development activities that enhance capacity to address service integration issues of CYSHCN and their families so that services are organized in ways that families can use them easily and be satisfied with services they receive.

  22. Integrated Community Systems Outcome Why Important? • National Survey for CSHCN • Only 89.1% families report services are easy to use. • 19.5% Spanish language homes report outcome not achieved. • 22% of those with emotional, behavioral or developmental issues report outcome not achieved • More difficult for complex medical needs, minority populations.

  23. Children & Youth with Special Health Care Needs Children & Youth with Special Health Care Needs Cshcndata.org OUTCOME Community-based service systems organized for easy useMichigan

  24. Transition to Adult Life Outcome “The optimal goal of health care transition is to provide health care that is family-centered, continuous, comprehensive, coordinated, compassionate, & culturally competent in a health care system that is as developmentally appropriate as it is technically sophisticated.” SOURCE: PEDIATRICS Vol. 110 No. 6 December 2002, pp. 1304-1306. A Consensus Statement on Health Care Transitions for Young Adults with Special Health Care Needs

  25. Transition to Adult Life Outcome Why Important • National Survey of CSHCN • Only 41.2 % (6%) of youth receive guidance and support in the transition to adult health care and have vocational/career training to prepare for adult job • Only 67.1% of mother only households achieve outcome • Trends • 90% of CYSHCN are living to adulthood • Employment rate for adults with disabilities hovers around 30%. (U.S. Disability Statistics) • Natural progression in a lifespan approach to systems of care for CYSHCN.

  26. Transition to Adult Life Race & Ethnicity in Michigan

  27. What Does This Mean For You? Grants, family leaders, other agencies

  28. Watch for Signs AlongYour Journey!! Hidden Entrance – Unforeseen Opportunities, Work Zone – Many Partners/Non-Traditional Divided Highway – Integrate New Traffic Pattern – New Paradigm Detour- More Than One Method/Communities Differ Hazardous Driving Conditions – Identify Challenges Watch for Pedestrians & Cyclists – Look for the “Champions” Slow Speed – Evaluate: Participatory Action Research (PAR) Toll Ahead – Budgets Reflect Priorities Stop Light - Competing Priorities Adapted from: T.D. Goode National Center for Cultural Competence, 2005

  29. Strategic Planning! Oh No!! The Non-Inclusive Way Michigan’s way- Everyone has a role, so be a “Champion!”

  30. Contact • Diana Denboba, Family-Centered Care/Cultural Competence and Community Integrated Systems Programs Director 301-443-9332; • DDenboba@hrsa.gov • Handouts • Michigan State Profile

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