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Public Engagement in the Effective Health Care Program

Explore the pivotal role of citizen and stakeholder engagement in healthcare research, community forums, and comparative effectiveness studies. Evaluate the significance of public input, dispelling myths, and fostering informed decision-making for improved healthcare outcomes.

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Public Engagement in the Effective Health Care Program

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  1. Public Engagement in the Effective Health Care Program Jean Slutsky Director, Center for Outcomes and Evidence AHRQ Annual Meeting Bethesda, MD September 27, 2010

  2. Donald Schön, 1983 • “In the varied topography of professional practice, there is a high, hard ground, where practitioners can make effective use of research-based theory and techniques, and there is a swampy lowland where the situations are confusing ‘messes’ incapable of technical solution. The difficulty is that the problems of the high ground, however, great their technical interest, are often relatively unimportant to clients or the larger society while in the swamp are the problems of greatest human concern.”

  3. Obama, iPad, and the value of information in 21c democracy (and business) • “What Jefferson recognized [is] … that in the long run, their improbable experiment — called America — wouldn’t work if its citizens were uninformed, if its citizens were apathetic, if its citizens checked out, and left democracy to those who didn’t have the best interests of all the people at heart. It could only work if each of us stayed informed and engaged, if we held our government accountable, if we fulfilled the obligations of citizenship.”

  4. Engaging the Public

  5. Suggesting Topics for Research

  6. Comment on Key Questions

  7. Commenting on Reports

  8. AHRQ Communities Forum on Comparative Effectiveness Research An initiative to expand and systematize citizen and stakeholder engagement in AHRQ’s Effective Healthcare Program. Citizen Input Stakeholder Input

  9. Definitions Citizens - Members of the general public identified without regard to medical background or experience. Stakeholders - Persons or groups who have a vested interest in a clinical, research or health policy decision.

  10. Community Forum Components • Develop and demonstrate deliberative methods and tools for obtaining informed public opinion as an input to decisions related to the conduct of comparative effectiveness research (CER), as well as the application of research results in policy and practice.

  11. So What Have We Learned? • It is important to have comments received in a central place • It is important to have responses centrally reviewed and released • In most instances, comments are cordial and useful • The volume of comments has been manageable

  12. The Value of Public Engagement in the Effective Health Care Program • “Nothing about me without me” • Understanding issues/values important to patients and providers • Relevancy of research to users • Dispels myths and fears

  13. Thank You! • Jean.slutsky@ahrq.hhs.gov • http://www.effectivehealthcare.ahrq.gov

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