NATIONAL PRESIDENTS MEETING

1. NATIONAL PRESIDENTS MEETING 11th September 2011 WELCOME!

2. AGENDA 10:00 - 10:05 Welcome and introductions Anastasia Laskari, EDTNA/ERCA President 10:05 - 10:15 Association’s Update & New Association Objectives Michel Roden, EDTNA/ERCA President Elect 10:15 - 10:30 “Attitudes of European Renal Nurses towards Older People; presentation of the project’s results, Alessandra Zampieron  10:30 - 11:00 New Project for collaboration: “Exploring the Challenges & Opportunities for Renal Care Across Europe - A survey of National Presidents of Renal Health Care Associations” John Sedgewick, Education Consultant, Maria Saraiva – EC member 11:00 - 11:30 Discussion on new projects Workshop chaired by John Sedgewick, Education Consultant

3. Association activities & Progressreport Anastasia Laskari EDTNA/ERCA President

4. Did we achieved our objectives in2010/2011?

5. Collaboration with industry EDTNA/ERCA enhanced and maintainedthecontinuity ofthe good collaborationwithindustrypartners and corporate members thanks to hard work of Jitka Pancirova, the Executive Director

6. Collaboration with industry Collaboration with industry includes: • Continuous partnership with corporate members • Ongoing project partnership – Go Green in Dialysis & Vascular Access Project • Launch of new project - IQD & Clinical Guidelines for Dialysis • Launch of new project – IV Iron Resourse Utilisation Project • 6th Operational Industry Advisory Board (IABM) planned for December • Support of educational publications • 5th Fresenius Middle East (FME) Renal Education Project was held in Romania • Fresenius Middle East and Diaverum courses have been successfullyendorsed

7. EDTNA/ERCA Publications Five new Publications are beeing launched: • Enviromental Guidelines for Dialysis, A Practical Guide to Reduce the Environmental Burden of Dialysis: Saturday, EDTNA/ERCA Projects with Industry Partners, Gallus Hall, 13:30 • Conservative Management in Advanced Kidney Disease, A Guide to Clinical Practice: Sunday, Conservative Care Session, Linhart Hall,14:00 • The Diabetic Patient and Chronic Kidney Disease, A Guide to Clinical Practice: Tuesday, Caring for the Diabetic Patient with CKD Session, Linhart Hall, 8:30 • Fármacos en Terapia Renal Sustitutiva, Guía de Práctica Clínica: Registration desk • Caring for the Eldery Renal Patient, A Guide to Clinical Practice: Sunday, EDTNA/ERCA Session, Linhart hall, 12:45

8. EDTNA/ERCA Newsletter Lithuanian – PDF Polish – PDF Portuguese – PDF Serbian – PDF Spanish * Slovenian- PDF Production in 13languages: • Dutch - PDF • English * • French * • Greek * • German * • Hebrew – PDF • Italian* *PDF and hardcopy • PDFs are available for members and non-members at www.edtnaerca.org • Besides the International Conference website, it is the most visited website • THANK YOU to all translators

9. Journal of Renal Care Increased distributionglobally through Wiley–Blackwell&EDTNA/ERCA channels Indexed/Abstracts in the British Nursing Index,CINAHL,EMBASE, MEDLINE, SCOPUS Requested Impact Factor for 2011 Change of JoRC Editor by end of the year: THANK YOU to Dr. Cordelia Ashwanden WELCOME to Dr. Nicola Thomas

10. Membership Brochure & Annual Report • Tool to be used to promote the Association • Available in English and Italian • Hard copies to be distributed at events • Available also on the web • Annual Report 2010 – Summary of activities, projects, achievements • Limited Edition of hard copies - Available onthe website • Maria Cruz Casal (coordinator)

11. Quality Management System The EDTNA/ERCA further develops the QualityManagement Systemthroughout the Association and will apply for ISO9001:2008 certification Our entire management system is based on interrelated processes which are consistently linked to each other and to the overall balanced scorecard objectives. We agreed to use an analytical approach to identify and categorize our processes. This means that all our processes, associated documents and forms are cataloged into one of the key process categories.

12. Cooperation with other Associations Establish closer links withrenal/non-renalinternational Associations: Signed level 1 collaboration agreement with: • PCNA (Preventive Cardiovascular Nurses Association) • EPA/UNEPSA (European Paediatric Association) • EDTNA/ERCA signed an agreement with EfCCNa and HENNA for a mutual project

13. Cooperation with other Associations “Attitudes of European Renal Nurses towards OlderPeople“ AnEuropean Network of Renal Care Association (ENRCA) project Results will be presented at the session: EDTNA/ERCA projects with NationalAssociations, Linhart Hall, Sunday September 11, 12:45-13:45 Participating National associationsin this survey: SOBEN (Brazil) SNDTN (Slovenia) CNMA (Cyprus) FS Nefro (Denmark) OANPT (Austria) BASW – SIG (UK) HENNA (Greece) APEDT (Portugal) FNB (Germany) INNA (Israel) AG Nephro of SBK(Switzerland) RSA (Australia, New Zealand) EDTNA/ERCA Italian Branch

14. Sponsors Diamond sponsors Silver sponsors Sponsors

15. Corporate Education Sessions S07 – Fresenius Medical CareSun, 11 September, 09.00-10.30 Caring the Cure: The importance of foresight in AVF complications! S10 – GambroSun, 11 September, 11.00-12.30 Individualized Quality-assured Dialysis – is there a room for improvement? S15 – DiaverumSun, 11 September, 14.00-15.30 The good, the bad and the unbearable – Nurturing the balance between dialysis life and patient expectation S18 – BaxterSun, 11 September, 16.00-17.30 Dialysis – whose choice is it anyway? S24 – Fresenius Medical Care Mon, 12 September, 11.00-12.30 Aspects of Optimising Drug Therapy for Dialysis Patients

16. Exhibitors Media partners

17. Corporate Members

18. Objectives 2011/2012Michel RodenEDTNA/ERCA President Elect

19. EC Responsibilities 2011/2012

20. Objectives 2011/2012 Enhance and maintain the continuity of the effective collaboration with industry partners and corporate members In 2009 the EDTNA/ERCA established the post of Executive Director to directly liaise with industry partners and keep continuity for projects and international conferences. Currently, the EDTNA/ERCA provides a platform to allow international industry partners to take active part in educational and research activities in order to improve the global quality of renal care and disseminate scientific results among renal care professionals.

21. Objectives 2011/2012 • Further develop the QualityManagement Systemthroughout the Associationto obtain the quality management • certification ISO 9001:2008 • Revision of Policy and Procedures • Update of necessary documents

22. Objectives 2011/2012 Further focus on Publications, Educational Programmes and Promotions • The English version will be available at the 41st EDTNA/ERCA International Conference in Athens, 2012: • “Drugs in Renal Replacement Therapy – A Guide to Clinical Practice” • JoRC Supplement to be launched early 2012: • “Diabetes and renal disease: two diseases one person”

23. Objectives 2011/2012 Collaboration with National associations on new projects to continue the good relationship for the benefits of both sides • Proposal for a new Project to develop further collaboration with EDTNA/ERCA &EuropeanRenal Care National Associations,aEuropeanNetwork of Renal Care: • Exploring the Challenges & Opportunities for Renal Care Across Europe:A survey of National Presidents of Renal Nursing Associations (ENRCA Project coordinated by John Sedgewick)

24. Objectives 2011/2012 Collaboration with National associations on new projects to continue the good relationship for the benefits of both sides • In collaboration with EfCCNa and HENNA: Acute Kidney Injury (AKI) publication (to be launched in 2012 at the 41st EDTNA/ERCA Conference in Athens)

25. Objectives 2011/2012 • To work on and establish a new strategy to find and motivate new volunteers to take part in the growth of the Association • updating the KM - LM strategy, doing a survey and work closer with the National Associations

26. Attitudes of European Renal Nurses towards OlderPeople presentation of the project’s results Alessandra Zampieron

27. SURVEY ON ATTITUDES OF THE EUROPEAN (INTERNATIONAL) RENAL NURSES TOWARDS OLDER PEOPLE Project developed in Collaboration EDTNA/ERCA & European Renal Care National Associations. An European Network of Renal Care Associations (ENRCA) Project EDTNA/ERCA Executive Committee Coordinators: Alessandra Zampieron (Italy) & Maria Saraiva (Portugal)

28. Participants

29. Deliverables • PowerPoint presentation with study results presented yesterday will be distributed to all participants to their use at National level. • National data will be available on request (please, contact Secretariat) • Publications in the EDTNA/ERCA News and in the Journal of Renal Care. • Book about care of older people in renal care distributed yesterday.

30. Thank you very muchfor your participation!

31. Exploring the Challenges &Opportunities forRenal Care Across Europe A survey of NationalPresidents of Renal Health Care Associations John Sedgewick, Education Consultant Maria Saraiva, EC member

32. Exploring the Challenges & Opportunities for Renal Care Across Europe - A survey of National Presidents of Renal Nursing Associations John SedgewickMaria SaraivaAlessandra ZamperionMargaret McCann

33. Project Team • John Sedgewick (Project Lead) , Education ConsultantEDTNA/ERCA • Maria Saraiva, Executive Committee Member • Alessandria Zamperion, Executive Committee Member • Alessandra Buja ,Statistician, Padua University, Italy • Margaret McCann, Nursing Lecturer, Trinity College, Dublin Ireland & EDTNA/ERCA Volunteer

34. Project Aims • Identify the current concerns /challenges facing the delivery of renal care across Europe as perceived by Presidents of National Associations • Explore the particular challenges encountered by healthcare workers in renal care • Determine where priorities need to be focused in terms of ensuring provision of quality care.

35. What is a Delphi survey Consensusmethods employed to help enhance effective decision-making in health and social care. The Delphi survey is a group facilitation technique, An iterative multi-stage process, designed to transform opinion into group consensus

36. The Delphi Method • A structured group interaction process directed in "rounds" of opinion collection and feedback. • Opinion collection is achieved by conducting a series of surveys • The result of each survey will be presented to the group and the questionnaire used in the next round is built upon the result of the previous round

37. Data Collection • Data collection will be undertaken in a number of  phases. - progressively focus on the key areas as determined by National Presidents. • Results of this Delphi study will inform future priorities and focus for research, practice & education activities within EDTNA/ERCA

38. Phase 1 • Initial focus group with sample of National Presidents during annual conference in Slovenia. • Generate potential items / areas / domains of concerns - the formation of survey

39. Online survey • Ease of use • Email link to survey • Items on a Likert scale • Approx 2 weeks to complete each survey

40. Study Phases • Phase 1 Focus Group (September 2011) • Phase 2 – Online Survey (Nov- Dec 2011) • Phase 3 – Online Survey (Feb – March 2012)

41. Study Results • Presentation of results at EDTNA/ERCA Conference 2012 in Athens • Publication which inform EDTNA/ERCA practice/ education & research priorities

42. Thank YouAny questions

43. Discussion on new projects Workshop John Sedgewick, Education Consultant

44. Meeting evaluation All

45. Conference venue 2012

46. 15-18 September 2012 in Athens!