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Dude, Where’s My Transition Plan?

Dude, Where’s My Transition Plan?. By: Family Voices of Tennessee. Session Overview. Responsibilities Transition IEP Self-Directed Services/Advocacy Support Systems Student’s Advice $$/Transportation/Housing Pop Quiz. Who’s on first?.

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Dude, Where’s My Transition Plan?

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  1. Dude, Where’s My Transition Plan? • By: Family Voices of Tennessee

  2. Session Overview • Responsibilities • Transition • IEP • Self-Directed Services/Advocacy • Support Systems • Student’s Advice • $$/Transportation/Housing • Pop Quiz

  3. Who’s on first? • We serve  parents, youth, family members, and professionals who have children with special health care needs • Assist families as they navigate public/private health systems • Educate families to access services, resources and supports • Work with/train health providers and other professionals • At the 2012 F2F grantee meeting we discovered each had a piece of the transition process; TN= Adult section, KY=Youth piece.  • Collaboration made sense • “Dude, where is My Transition Plan” was born!

  4. Are You Talking to Me? • Each state interviewed “transitioning aged youths” • We learned most youths are not prepared for Transition • We learned youth need more help with Transitioning to Adulthood • “How could we improve the process of transition?” • “Needed hands on experiences”

  5. Yeah, I’m Talking to You!

  6. So Many Responsibilities…So Little Time! • Start at an early age • Each child may differ • Responsibilities change as the child gets older • Youth should be included in decision making • Including health care and education • Does your youth know what they are responsible for once they turn 18?

  7. Affordable Care Act…does that affect me? • As you grow, so will your doctors! • Where does my specialist fit in • Finding a doctor that meets my needs AND covers my health plan

  8. Health Care

  9. Knowledge of Rights Under the ADA(American with Disabilities Act) • It’s about Civil Rights • Protects you from being discriminated against due to your disability.

  10. ADA and Health Care Providers • The ADA requires health care providers to provide individuals with disabilities: • full and equal access to their health care services and facilities. • reasonable modifications to policies, practices, and procedures

  11. Examples of Health Care Provider Accommodations • an accessible exam table or a patient lift • enough trained staff available who can assist you to transfer • a qualified interpreter • written materials • assistive listening devices

  12. What is “Transition” • It’s a change • It’s exciting, yet a little scary

  13. Make a New Plan, Stan • Parents and teachers talk about transition planning. What is that? • It’s a plan, that involves the whole team • When should transition planning begin?

  14. What does my “IEP” have to do with transition planning? • Your Individualized Education Program (IEP) is like a road. • “Individualized” means about you. • It’s important to pay attention to your IEP. • Ask your teacher about a “Self-Directed IEP”.

  15. What are Self-Directed Services and Self Advocacy? • You (the youth) are in charge of the services you get. • Important thing to know: can’t happen w/o self-determination and self-advocacy. • What are Self-Determination & Self-Advocacy? • How can I learn to advocate for myself?

  16. Check it out…

  17. What do people mean when they talk about “supports?” • Doing things you haven’t done before • But you don’t have to do it alone • The kinds of supports we need may change • Often we use more than one support at a time • Supports differ from person to person

  18. Learn Independent Living skills Learn about Resources Start early Learn to Drive/use public transportation Actively Participate Ask ?s Set goals What’s the word? • Advice from other students • Students listen to other students • Here’s what they say:

  19. After High School, the Rules Change • Services available after high school may not be the same services during high school. • You will have to locate new services and provide information that you qualify for those services.

  20. Let’s Compare:

  21. Money Matters • Do you have a budget (or know what a budget is)? • What’s a “money mentor”? • Who could you ask to be your “money mentor” • Other possibilities • Business owners • Neighbor • teacher

  22. There’s No Place Like Home • Where do you want to call home? • It’s not just “where you live” • What other choices are available besides living with my parents? • Renting • Roommates • Independent living program

  23. Easy Rider • How do you get from one place to another? • What are your transportation options?

  24. Don’t Just Stand There, Bust a Move! • So, now what?

  25. Pop Quiz • Complete quiz • Discuss answers

  26. Questions?

  27. Thank you… • A special thank you to the Kentucky Family-to-Family Health Information Center for collaborating with us on this project.

  28. Belinda Hotchkiss Family Voices Director Tennessee Disability Coalition 615.383.9442 Belinda_h@tndisability.org www.tndisability.org Toll Free: 1.888.643.7811 Tonya Bowman Middle TN Parent Navigator/Newborn Hearing Parent Consultant Tonya_h@tndisability.org www.tndisability.org

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