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ACE Project Conference – Tartu - Estonia June 2011. European Disability Policy : a right-based approach "Nothing about us without us”. Autism-Europe – Presentation. Autism-Europe is also a founding member of wider European Networks. Supporting the “Social model of Disability”.
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ACE Project Conference – Tartu - EstoniaJune 2011 European Disability Policy : a right-based approach "Nothing about us without us”
Autism-Europe isalso a foundingmember of wider European Networks
Supporting the “Social model of Disability” Medical model Emphasis on Disability (negative perspective) Disabled person as object of assistance (patient) Services tailored to impairments social model Emphasis on Potential (positive approach) Disabled people as a subject with human rights and self-determination NOTHING ABOUT US WITHOUT US Programmes tailored to individual needs
Fighting for the rights of persons with ASD • Right to diagnosis and access to adapted care • Right to life-long education • Right to training and to work • Implementation of the non-discrimination principle • Right to inclusion (de-institutionalisation, etc) • Positive actions
Main European Instruments • European Convention for the Protection of Human Rights • European Social Charter 1961-1996 • Recommandation of the Council of Europe Resolution ResAP(2007)4 on the education and social inclusion of children and young people with autism spectrum disorders • UN Convention on the rights of people withdisability • Charter of Fundamental Rights • Directive EC 2000/78 for equal treatment in employment and occupation
United Nations Convention on the rights of people with disabilities
The rights recognized by the UN Convention cover almost all policy fields (accessibility, employment, education, health, independent living, civil rights) • The UN Convention do not add new rights • Mixed competences between EU and Member States (all the MS have signed the UN Convention) • Text of the UN Convention and updates: http://www.un.org/disabilities/
- 30 March 2007: the European Community signs the UN Convention on the rights of people with disabilities • Council Resolution 2008/ C 75/01: invites the Commission to begin work on a new EU Disability strategy to fully implement the UN Convention • November 2010: Adoption of the DisabilityStrategy 2010-2020 • 23rd December 2010 : conclusion of the UN Convention by the EU (has to implementit in all itspolicies).
EU disability Strategy 2010-2020 Elimination of discrimination on the grounds of disability Full enjoyment of all human rights and fundamental freedoms for persons with disabilities as well as their active inclusion. The European Commission has identified eight main areas for action: Accessibility, Participation, Equality, Employment, Education and training, Social protection, Health, and External Action.
Education and lifelong-learning UN Convention Article 24: right to education and lifelong learning Ensure that persons with disabilities are able to access general tertiary education, vocational training, adult education and lifelong learning without discrimination and on an equal basis with others.ensure that reasonable accommodation is provided (e.g.adapted infrastructures, equipment, transports, etc.) EU disability Strategy 2010-2020 “(....) The EU will increase knowledge on levels of education and opportunities for people with disabilities, and increase their mobility by facilitating participation in the Lifelong Learning Programme.”
What is the role of civil society in the monitoring process? • In relation to national monitoring, the Convention expresslystipulatesthat civil society, in particularpersonswithdisabilities and theirrepresentativeorganizations, shallbeinvolved and participatefully in the monitoring process(see Convention article 33.3). • In relation to international monitoring, States parties are invited to give due consideration to consulting with and activelyinvolvingpersonswithdisabilities and theirrepresentativeorganizationswhennominating experts for the treaty body (see Convention article 34.3)
Participation of people with Autism « Participation: making sure that persons with disabilities and their families exercise their EU citizenship rights on an equal footing” (EU disabilityStrategy - 2010-2020) Need for empowerment – Nothing about us, without us Need for life-long training and habilitation
ACE project • Enhancing communication and social skills • participation in online communities • travelling to other countries (Slovenia, Italy, Great Britain and Estonia) • Becomingactive citizens through self-advocacy