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This article discusses the importance of integration and interoperability in healthcare, highlighting the need for a reality check and putting citizens at the center of care. It explores the self-isolation of the health domain, the relationship between health and citizens, and the traditional view of the health sector. The article also examines the role of social care and the need for interoperability to bring about positive changes. It emphasizes the challenges and complexities of achieving health and care seamlessness and proposes a reevaluation of current approaches.
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Citizens, Seamlessness, and Care - Inter-relationships and Inter-operability Michael Rigby Emeritus Professor of Health Information Strategy Keele University, UK Senior Lecturer, Nordic School of Public Health
The Clear Drive to Integration • Fragmentation bad for care • IT has integrated health enterprises • Increasing integration of health domains • Citizens use distributed IT • Citizens travel • Increase (international) interoperability
The Need for Reality Check • Increasingly doing the obvious more and better can be dangerous • Cars, buildings, drugs • Are we becoming seduced by technology, led by experts? • Need reality check: • Revisit Need • Put Citizen at Centre
Self-Isolation of Health Domain • Health IT innovation seen lagging behind: • ATM; Amazon; supermarket point-of-sale • Health working within itself • Hence move to European health interoperability to match e.g. banks • Matched to citizen travel
Health and the Citizen • Most citizens need Healthcare at home • Most Health-dependent citizens do not travel far • Most health-vulnerable citizens weak on IT and IT access • Citizens see Health sector as isolated and inflexible
Traditional View of Health Sector HEALTH Tertiary Hospital Acute Hospital Community Hospital Primary Care
Needy Citizen’s World Frail elderly, post-trauma, mentally ill, cancer patient, etc. CITIZEN Family Community Groups Informal / Neighbour Carers
Make a Poor Match HEALTH Tertiary Hospital Acute Hospital Community Hospital Primary Care CITIZEN Family Community Groups Informal / Neighbour Carers
Social Care just as Important HEALTH SOCIAL CARE Tertiary Hospital Specialist Acute Hospital Social Work Day Care Community Hospital Primary Care Cleaning, etc. Meals CITIZEN Family Community Groups Informal / Neighbour Carers
Often other Services Too HEALTH SOCIAL CARE Tertiary Hospital EDUCATION HOUSING Specialist Acute Hospital Social Work Day Care Community Hospital Primary Care Cleaning, etc. Meals CITIZEN Family Community Groups Informal / Neighbour Carers
What should Interoperability Bring? The Natural Temptation • Increasing technical linkage • National and international movement • Inter-operability not just Read Only • Across Languages, etc.. • Empower the European Citizen
What should Interoperability Bring? Citizen at Centre • Link health agencies and actors • Integrate all services round ‘Care’ • Common care aims and care plans • Diaries and Schedules • Cross agency communication • Common terms and meaning • Empower the Citizen in Europe
Heading to Complexity COMPLEXITY Health Practice Technical Issues Local International DISTANCE
Not Meeting Most Frequent Need FREQUENCY of NEED Patient Benefit: Health seamlessness Local International DISTANCE
Not Meeting Most Frequent Need FREQUENCY of NEED Patient Benefit: CARE seamlessness Patient Benefit: Health seamlessness Local International DISTANCE
Addressing the Wrong Challenges FREQUENCY of NEED COMPLEXITY Patient Benefit: CARE seamlessness Health Practice Patient Benefit: Health seamlessness Technical Issues Local International DISTANCE
Time to Rethink • Put citizen benefit first • Frequency, depth of benefit • There are still challenges to tackle • Still opportunity for European benefit • Health as “a state of physical, mental, and social wellbeing and not merely the absence of disease or infirmity” • Inter-operability to Integrate Care