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South Carolina Colon Cancer Prevention Network. March Seabrook MD, FACG marchseabrook@gmail.com. This presentation was given at the NCI Community Cancer Centers Annual Meeting on Tuesday, August 28, 2012. Success Under State Budget Shortfalls. Grant focused SCOPE/SC funding
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South Carolina Colon Cancer PreventionNetwork March Seabrook MD, FACG marchseabrook@gmail.com This presentation was given at the NCI Community Cancer Centers Annual Meeting on Tuesday, August 28, 2012
Success Under State Budget Shortfalls • Grant focused SCOPE/SC funding (Screening Colonoscopies On People Everywhere/South Carolina) • Initially funded in 2008 • Expanded funding in 2009 but not renewed 2010 • SCCCPN Pilot • SC Gastroenterology Association & Center for Colon Cancer Research • 2 year funding from BCBSSC $100,000 • Free Medical Clinics: Anderson & Greenwood, SC • 220 colonoscopies performed
South Carolina Colon Cancer Prevention Network (SCCCPN) Statewide Partnerships Members of the South Carolina Cancer Alliance • Gibbs Cancer Center • Hollings Cancer Center • Medical University of South Carolina Digestive Disease Center • SC Free Medical Clinic Association • SC Gastroenterology Association • University of South Carolina Center for Colon Cancer Research
South Carolina Colon Cancer Prevention Network (SCCCPN) • The goal of the Network is to reduce the incidence of CRC and improve outcomes among the medically underserved in SC. • Our goals: • Increase rates of screening and survelliance colonoscopy • Improve the quality of community based colonoscopy • The Network will accomplish these goals by developing a state-of-the art patient navigation and data tracking system
Risk of Large Bowel Polyps Among the Medically Underserved • Medically underserved have higher incidence of CRC and worse survival • Can we build the infrastructure to answer this question? • Can we determine why? • Collect epidemiologic and specimen data and track outcomes overtime
Ensuring Quality Patient Care • Develop qualifications for participation including: • Training • Experience • Adenoma detection rate • Complication rate • Cecal intubation rate
Ensuring Quality Patient Care Facilitate the establishment of a quality review committee to include established experts in colonoscopy that will review colonoscopists: Credentials before they are enrolled. Concordance with national guidelines ADR, complication rate, cecal intubation rate appropriate follow up for polyp management requirement that all data forms are completed accurately fully and using appropriate terminology after pathology is finalized. Monitor first 20-25 cases for quality Collaborate to develop standards for colonic preparation. Creation of a surveillance network.
Tracking System and Database • Navigation Tracker • Schedule and track all appointments • Complete eligibility screening • Upload endoscopy and pathology forms • Secure communication among project consultants at the community-based clinics, endoscopy centers and data coordinating center • REDCap (Research Electronic Data Capture) is a secure, web-based application designed exclusively to support data capture for research studies. • Upload questionnaire data
SCCCPN Project Findings to Date • Completed 123 colonoscopies to date • 74 of 123 patients are African American • 55% of Caucasian Patients are Female • 51% of African American Patients are Female • Data Analysis (n=43) • One cancer (HP/neuroendo), and one HG dysplasia • 44% of patients are female, 56% male • 37% of patients have had at least one adenoma • 14% of patients have presented with a high risk phenotype (presence of a large >=1cm or >25% villous containing 3 or more adenomas • The most polyps found in a patient = 6 (two patients)
SCCCPN IMPACT • Access to screening colonoscopy for uninsured population. • Navigation to prevent patients “slipping through the cracks” • Tracking system established for surveillance through the NT system. • Impact health disparities through a statewide research partnerships. • Addresses activities in key NCCCP focus areas: Quality of Care Disparities Bio-specimen/Bio-repository IT
Where do go from here … • Customize data tracking system to enhance virtual communication • Develop standard operating procedures for the patient navigation process among the medically underserved • Expand to other sites around the state so that all medically underserved patients are serviced • Develop partnerships with academia and private industry to sustain our Network overtime
SCCCPN Website: http://etl2.library.musc.edu/scccpn/index.html • Marylou Stinson, MPH, MSW Colorectal Cancer Outreach Program Manager Gibbs Cancer Center and CCCR mstinson@srhs.com • Patricia Hegedus, RN, OCN, MBA Director, Oncology Clinical Performance Gibbs Cancer Center phegedus@srhs.com