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Teaching about “Telling the Truth of Terminal Cancer”. Dena Hsin-Chen Hsin China Medical University, Taiwan ; Institute of Biological Sciences, University of Tsukuba. Trails in Taiwan. University ; as first year’s General Education in English Course (five classes) High school ;
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Teaching about “Telling the Truth of Terminal Cancer” Dena Hsin-Chen Hsin China Medical University, Taiwan; Institute of Biological Sciences, University of Tsukuba.
Trails in Taiwan • University; as first year’s General Education in English Course (five classes) • High school; as selective topics in Science Course (one class)
Trails in five classes of paramedical department in medical university • Department of Oral Hygiene (口腔衛生系) • Department of Public Health (公共衛生系) • Department of Sport Medicine (運動醫學系) • Department of Occupation Safety(職業安全系) • Department of Cosmetics Pharmacy(藥物化粧系)
Contents of learning Teams approach to present the topics Pre- • Decide a chapter • Context review and references search • Design classroom activities Presentation • Short talks, drama, cluster discussion, result of questionnaire, invited guests talks, film show,… Post- Summary or supplement from teacher
Reasons of choosing Truth Telling as a Topic • Some has experience and deep thoughtto share • Popular, important and easy to understand • Close to us , easy to prepare, in unanimity • To prepare oneself in helping the patients • Have ever think abut it and would like to discuss with others. • Would like to face the truth of life
Contents of learning Team approach to present the topics Pre- • Decide a chapter • Context review and references search • Design classroom activities Presentation • Short talks, drama, cluster discussion, results of survey, invited guests' talks, film show,… Post- Summary or supplement from teacher
For example; Questionnaire Survey of public opinions in truth telling(60 randomized samples in the campus) 1. Would you like to know if you had terminal cancer? Yes : No = 65 : 35% 2. Would you tell your mother or father if they had terminal cancer? Yes : No = 53 : 47%
In the class; (after the presentation) 1. Would you like to know if you had terminal cancer? more than 90% (yes) 2. Would you tell your mother or father if they had terminal cancer? less than 30% (yes)
Contents of learning Team approach to present the topics Pre- • Decide a chapter • Context review and references search • Design classroom activities Presentation • Short talks, drama, cluster discussion, results of survey, invited guests talks, film show Post- Summary or supplement from teacher Submit assignments
Four topics( four hours) • Autonomy • Justice • Benefits versus risks • Telling the truth about terminal cancer
Your opinions in telling the truth…..(Responses from High School Students) Not support - 1/42 harm; refuse or give up or suicide Not sure – 2/42 wonder who can cope with the truth.... hard to prepare for.. Support – 39/42 right to know, truth/lie, to benefit from knowing, personal experiences from families, impossible to hide…in the last moment will harm more
Q1. If you only had a week to live, how would you like to spend that week? Lots of fancy ideas. Do whatever I can do, some crazy things…no moral restriction / stay with families, to make up for something or to live as usual,…. • Q2. Try to write a living will or advance directive (a document which says how you would like to be treated when dying) of your medical preference for your terminal stage. ……die indignity and no pain, help me to die beautifully, save resource to others, Euthanasia, up to my parents, …
Comparisons and findings • Difficulties in high school; Exam oriented teaching, Not flexible in curriculum design • Different levels of thinking in two groups. Fancy ideas / In-depth thinking; curing / caring survival rate / quality of life the truth / the art of telling treat myself / treat others
For example;Q1. If you only had a week to live, how would you like to spend that week? • In high school; Lots of crazy ideas." I want to see…, do what I cannot do before …." • In university; To say thanks (to my parents, to one who love me…) to say good bye (to have a farewell party, …) To say sorry (to someone I...) Letting go
Cultural influences in telling the truth about terminal cancer During the presentation and discussion • Family Paternalism in medical decisions • Death as a taboo • Filial piety as a social norm to protect elderly from the truths • Options of alternative and folk therapies
Role of teachers – • To give space and offer facility for learning • To answer the real-life quandary; for Ex: - Suggest the key points of communication skills in telling the truth… - Introduce options other than traditional medical care, i.e. hospice care, natural death - Offer the real situation in hospital settings, ex. 4 contexts of dying awareness • To summarize and encourage
Brief targets in life education Respect for life, consider risks and benefits, understand better in diversity - bioethics education • To think about one’s death • To reflex the personal experience of death • Self improvement in death attitudes • To prepare for the future profession
Potential for the future "Telling the truth about terminal patient" can be a chapter in: • Bioethics course • Patient communication orinteractioncourses and Pre-course in oncology studies. • "Life and death" education Appropriate to put in "General education" of first or second year curriculums in medical university
Topics selection of bioethics presentation Department of Oral hygiene (口腔衛生系) • Organ donation To show the utmost love of human society • Animal right On the base of caring Animals • Organ donation To consider more about our wishes to donate • Truth Telling has to face the truth of life • Euthanasia A huge controversy issue; easy to search in net • Truth Telling A controversy issue, have ever think abut it, and would like to discuss with others • Euthanasia Conflicts between humanity and benefits
Topics selection of bioethics presentation Cosmetics Pharmacy (藥物化粧系) 1. GM foods Hot topics, get to know more about it 2. Truth Telling Some has experience and deep thought to share 3. Organ donation Disputable topics 4. Organ donation Should be more deliberative (even it is open now) 5. Euthanasia try to know more about it, easy to get attention 6. GM foods hot topics, lots of update references 7. Lifestyle and fertility related to female, and our personal concern 8. Euthanasia Interesting and disputable
# To learn by team works • Students were group into team (4-6 persons a team) • Select a chapter • Search and read • Design programme of class activities